This is indeed very worrying and in this day and age you would or should expect that it does not occur, but it does.
A few years ago Care and Treatment Reviews (CTRs) were introduced in England by NHS England, and I did start the training to be one of the ‘Experts by Experience’, but, I had to withdraw as I came to the conclusion that I did not have sufficient spare time capacity to do effectively, the work required.
I am, however, aware of some persons who went through the training and became ‘Experts by Experience’. When asked to do reviews these can be anywhere within England and may require the need to have overnight stays if the review is some distance away from where the ‘Expert by Experience’ resides.
In theory these reviews are a very welcoming practice and hope in practice that they hold up to be.
When persons with Learning Disabilities and/or Autism are committed into one of these Special Hospitals, it should have been for a short period of time, but in practice, before the ‘CTRs’ were introduced, but in practice his was not so. As once in it was extremely difficult, if not bordering on the impossible to be discharged, so I do hope the CTRs are effectively being used to minimise this practice.
Perhaps Experts by Experience, if they are willing to do so, could comment.
There are 1.5 million learning disabled people in the UK, but they are rarely seen or heard from. Little is spoken of this demographic of people, who in many cases completely rely on others in order to live.
Unless you’re a family carer or professionally involved, you may not know or have regular contact with any learning disabled people.
However, in episode 7 of the latest season of The Crown, viewers learn more about the royal family and learning disabled people. Peter Morgan, creator of the series, writes about two learning disabled women, Nerissa and Katherine Bowes-Lyon.
In Morgan’s fictional depiction, Princess Margaret and the Queen discover that Katherine and Nerissa, their cousins on their mother’s side, are still alive, despite being listed as dead in Burke’s Peerage, and have spent their adult lives in an “institution for mental defectives”.
Despite being born into wealth and privilege, Nerissa and…
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