Family Facing Deportation From Australia Because Of Son’s CP


I agree with you.

This is disgraceful that residency can be judged on the disability of a child and the related cost to Australia.

Yes, this is how it is in Australia today.

This is blatant disability discrimination, which I  would not have thought possible in such a progressive country as Australia. For this means it does not matter, what people have been doing in Australia, working there and producing wealth, not just for themselves, but also Australia, for when they have children and if they dared to have a child with disabilities, this could affect the decision whether they could stay in Australia. It shows that these parents have not been really valued by Australia, perhaps these parents should be able to claim from Australia a cost related to their time in Australia and the benefit Australia has had from them.

This is not what should be expected from, a so called, civilised country, as Australia, appears, to take what they want and then discard, when they feel there will be additional costs to Australia.

For this is totally disgraceful and Australia should be ashamed of themselves. This is a form of abuse, disability abuse.

Same Difference

I can’t describe how sad and angry I am after reading this. I have Cerebral Palsy and am a British Asian. I have grown up in the UK. I can’t imagine anything like this happening here. The fact that this child was actually born in Australia just makes the situation 1000 times worse in my eyes.

Australia’s disability discrimination commissioner has called on the immigration minister, Alex Hawke, to intervene “in a humane way” in a case in which a family is facing deportation because their six-year-old son has a disability.

On Tuesday night Ben Gauntlett was quizzed at Senate estimates about the plight of Australian-born Kayaan Katyal, and his parents, Varun and Priyanka, who are facing deportation after being rejected for permanent residency last month.

The ABC, which revealed the case on Sunday, reported that the family had been told in a rejection letter that Kayaan would cost…

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Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone.

 

 

Source: Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian

Covid 19 my vaccine experience.


I too have had the Pfizer BioNTech vaccine and now waiting for the second injection.

The first injection did not cause me any major problems, only had some numbness, on the next day, where the injection had been, but this had gone by the following day.

I have not rushed out thinking I was now safe, but continue to shield and will do until, at least, I have the second injection. Even then I will continue to stay safe, wear a face-mask when I go out and respect Social Distancing. I also wash my hand regularly throughout the day and certainly when I come back from medical appointments, the only reason I do leave home.

Until everyone has had the full course of injections I will not feel safe to go out.

I had the injection, not only because I believe in having injections and to safeguard myself, but also to safeguard others and do my bit to see that the effects and mutations of COVID-19 are substantially reduced or even eliminated. However, I do appreciate that I and others will need regular COVID injections, just like we do for the Flu. This is not to say COVID is like the flu, as it is very much worse and could cause long-term deliberating conditions in those who are not vaccinated.

I do have an adult daughter who has a severe aversion to needles and as she has Learning Disabilities and Autism does not have the capacity to understand anything about COVID-19.

So, until there is an alternative to the injection, such as a Nasal Spray she will be open to contract COVID-19, so I owe it to her to do all I can the ensure I will not be able to pass COVID-19 onto her.

The poor side of life

Yesterday I had my Covid 19 vaccination. I had the Pfizer vaccination and I really couldn’t wait for this day to arrive.

Most of you will know that my Covid 19 and Long Covid experience has been horrendous.

I first became ill with Covid 19 last April and I quickly became extremely unwell. You can read about this in my previous blog posts. I also developed Pneumonia and pleurisy and had numerous relapses.

To say that I was excited for my vaccine was an understatement, I can never forget how ill I have been and I certainly don’t want to catch it again. Not only do I have to think about myself I also have to think about my daughters wellbeing as well.

I was virtually bedbound for around a month except for the odd trip downstairs which completely exhausted me. As a result my illness really scared my daughter…

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Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities, especially in Wales. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone

Source: Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian

Frances Whiley: Another Sister Speaks For Her Brother With LD


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities, especially in Wales. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone.

Same Difference

Since the pandemic began more than a year ago, one of my greatest fears has been losing my brother, who lives in a care home. He is in his late 20s, is severely autistic and has epilepsy, as well as other complex needs. He is extremely vulnerable. According to Public Health England, people with severe learning disabilities are six times more likely to die from Covid-19 than the general population. In my brother’s age group, the 18-34 bracket, the death rate is 30 times higher.

Then there is the added risk of where he lives. According to the Office for National Statistics (ONS), living in a care home is a “major factor in the increased exposure of people with learning disabilities to Covid-19”. The communal nature of these facilities, combined with how much contact is required between care workers and residents – my brother needs help with everything, from…

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Tara Bostock’s Family Call For Research Into LD Covid Death Rates


I agree wholeheartedly that persons with Learning Disabilities and also Autism should have been and now need to be given an increased priority to receive the COVID-19 vaccines.

In fact there is a petition, Prioritise vaccinations for people with a learning disability.

Persons with Down’s Syndrome have now been included in Priority 4, whereas some others with Learning Disabilities are now in Priority 6, but not all and therefore they will be vaccinated according to their age.

A further consideration is for persons with Learning Disabilities who have an aversion to needles and therefore can’t have the vaccine by injection. But currently there is no alternative, however, I do believe that 2 forms of Nasal Spray are now being tested within the UK.

Since May 2015 there has been the Learning Disabilities Mortality Review (LeDeR) programme. This programme is showing that persons with learning disabilities, (LD) mortality is 20% less than persons who do not have learning disabilities. All deaths of persons with LD are, currently, referred to the LeDeR programme and research is ongoing, so why did the Government take this into account, when forming the priority groups and not wait until the situation was specifically mentioned to them, as NHS England are aware of the programme as it is funded by them.

I do wonder, if the lack of attention to persons with LD is not by accident by this and previous Governments and that there is an underlying motive.

Same Difference

The family of a woman with Down’s syndrome who died after contracting Covid-19 are calling for more research into how the virus affects people with disabilities.

Tara Bostock, 51, from Barlestone in Leicestershire, died despite having self-isolated, her family said.

Research has found people with learning disabilities are more likely to die from Covid.

Ms Bostock’s family described the death rate as “astonishing”.

‘Appalling loss’

Ms Bostock – described by her family as “a joy to be around” – lived with her sister and was waiting for a vaccine before she died on 21 January.

Her relatives said she was “the most beautiful, loving person”.

Niece Rebecca Barnes said people with learning disabilities needed to be vaccinated faster.

“I completely understand the elderly are very vulnerable,” she said.

“They need to be looked after, but there are other people that need looking after as well.

“The figures are astonishing [concerning]…

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Covid’s Harmful Effect On Disabled People’s Activity Exposed By Survey


Again persons with disabilities are adversely affected through no fault of their own.

Disabled people are already not treated equally in UK society, even though there has been legislation to correct this. This includes the Disability Discrimination Acts 1995, and Disability Discrimination Act 2005, and Equality Act 2010, but much more needs to be done. The Government compound this in their attitude to disability benefits and now COVID, which has closed many opportunities for people, including disabled people to engage in sports, a lifeline for many disabled people to engage with.

Then there is the COVID vaccine programme which as only minimally looked at and provided priority to some disabled people, namely Downs Syndrome.

Much more needs to be done for any chance of equality to be gained, but this Government does not have a clue.

For they are also failing to act on Social Care, which many disabled people and others rely on to maintain life.

This is a Government of in-action when it comes to disabled people.

Same Difference

Covid-19 has reversed progress made in levels of activity among disabled people, according to a new report, amid concerns the gains may not be recovered because of the scarifying effects of the pandemic.

The observations come in the second Annual Disability and Activity Survey, which measures participation and attitudes towards physical activity among disabled people. Conducted by the disability charity Activity Alliance, it is seen as a companion to Sport England’s Active Lives study.Leading Paralympian says lockdown needs of disabled people ignoredRead more

The survey found that before the onset of Covid the number of disabled people who said they were physically inactive had fallen to 34%, down from 41% the year before. This corresponded with an 18% rise (from 40% to 58%) in the share of those who said they had “the opportunity to be as physically active as they want to be”. Following Covid, however…

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Katie Price: Harvey And Me


Anybody’s son or daughter moving on in life is a stressful and worrying situation, but even more so in respect of persons with autism and some other conditions. This is because parents and the children have spent years getting to know each other and now in a moment in time great change is occurring. Even when all is going smoothly, there is always going to be that deep down worry, what can happen next, have we covered everything and any others that may occur.

But life as to go on and nothing will ever be fully covered.

But with autism will the new surroundings and people within have sufficient knowledge to manage all that can occur and the answer is most likely not, all that everyone can do is the best available.

Same Difference

When faced with having to move their disabled child to a different school or college, families face difficult decisions. Now, reality TV star and ex-model, Katie Price, is on that journey with her eldest son, Harvey, who is about to make that transition.

It was a quiet 18th birthday for Harvey. There were balloons in the garden and presents were opened, including a frog lunchbox and an iPad. For a treat, Katie took him to one of his favourite places – the local train station.

“This is the best train ever. I love it,” Harvey says, taking photographs.

His birthday marks another milestone. It is time to leave school and find a college, a process the family has filmed for BBC One documentary, Katie Price: Harvey and Me.

“It’s pretty predictable to know what will happen with the other kids,” Katie says, who has four other children. “But with…

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How many more DWP deaths will there be?


The figures speak for themselves, so no one should be in any doubt about the intentions of this Tory and previous Tory Governments in their will to decimate the population of disabled people.

Yesterday 27 January 2021 was Holocaust Memorial Day and the Tories are as guilty as the Nazis, the Serbs and others in the massacre of sections of their community by numerous methods

insufficient funding of Social Care

insufficient funding of Community Care

Sanctions on benefit claimants

COVID-19 scandals in Care Homes

insufficient vaccine priority for persons with Learning Disabilities and/or Autism

and many others

Boris has stated he and his Government have done the best they can during COVID-19, well if that is their best I would not wish to see their worst

Then to ‘Cap It’ he stated the immortal phrase ‘Lessons would be Learnt’, well from my 71 years of experience of life I have never seen that lessons have been learnt, is this due to, not wishing to learn, no funding to learn, inability to learn or others I can’t really say, although I assume funding will play a big part, but in effect it could be a mixture of them all.

So, unfortunately I can’t see anyway learning can be improved, unless all of the above are reversed and them some.

Govt Newspeak

Mum, 27, took fatal overdose after litany of 28 failings in DWP benefit claim, I don’t call it failings I call it culpable manslaughter! Time and time again we saw death after death and the DWP refused to act or denied that there was a problem, whilst we saw death after death because of the DWP’s negligence. Sadly, I have written/reblogged many articles about DWP deaths and they never fail to upset me, mainly because my own husband truthfully admits he’d have been one of “collateral damage” if I hadn’t have fought tooth and nail for him

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Autism: ‘They Said Bleach Would Cure My Daughter’


What a difficult situation to be in for you would expect support from your family and/or your community regarding autism and the professionals to help you by sorting the misinformation from friends and community.

For autism is something that is not generally known about, well I did not. That was, until someone came to my place of employment to give a talk an autism.

I should explain, I was working at a day service for adults with learning disabilities and in this talk everything that was said I could see my own daughter and it gave me a great insight in explaining her behaviours and how to deal with them.

Eventually, after some lengthy deliberations with myself, that I decided that I wished to get a formal diagnosis. It was then I talked to my wife and eventually she agreed and then to discuss this with the appropriate authorities, who also eventually agreed and we then went on the waiting list.

Eventually the authorities advised that the they would commence the diagnosis process and the lengthy diagnosis process started and after some time an autism diagnosis was given.

This showed me how complex autism is in every way.

People are wary of the unknown and some can’t cope with it, so they put in place rituals and diversions so they can.

This could be why the BAME community put in place the reasonings they do.

But the professionals should be more aware of all the various situations and put in place facilities to help all concerned. But they do not and leave people to their ignorance and misconceptions and this makes life difficult for others who wish to understand more about autism.

Same Difference

“I’ve had people offer me products to ‘kill the autism’ – bleach, salts, supplements.”

For Yvonne Odukwe, a Nigerian living in Newport, community stigma around her daughter’s autism is a barrier – but it’s only half of a “double whammy”.

She and others say black, Asian and minority ethnic (BAME) people can also face poor engagement from authorities.

The Welsh Government said its national autism team “regularly engages with BAME communities” among other steps.

“It’s a double layer,” said Yvonne, mother of 19-year-old Jasmine.

“I’m fighting the mainstream and then I’m also fighting my community because they’re not accepting me and, in many cases, blaming and shaming me.”

Autism is a lifelong development disability which affects how people see, hear and interact with the world.

Yvonne, a mother-of-three, said that like many parents of autistic children, she’d had to fight to get Jasmine support, but many parents from backgrounds like…

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