Archives for category: Disability

Unfortunately disability is the generally forgotten or certainly not mentioned in many aspects of Social Care, by the Government, the Media and many other areas, but disabled people do form a substantial proportion of persons needing care and support and their unpaid carers need consideration also.

Many disabled people will need social care interaction for most of their life with a large number of them requiring this from birth. In these instances, through no fault of their own, they will not have been able to provide for their care through forms of employment and not by choice. Also for many of them they will never be able to obtain any form of employment purely due to their disability condition or more likely conditions.

It is therefore evident that should be mentioned and considered to a much greater degree than they are currently. However, will the Government and the media listen.

Scope's Blog

Today the Government has announced the laws they plan to pass and the issues they will consult on over the next two years in the Queen’s speech.

The Queen’s speech is taking place in an unusual political context with the Conservative party having failed to secure an overall majority and still in talks with the Democratic Unionist Party over a confidence and supply agreement.

Queen’s speeches normally take place once a year but with the backdrop of Brexit negotiations, there won’t be another one until 2019, so if legislation wasn’t announced today it is now unlikely to be considered over the next two years.

The Conservative manifesto made commitments to get more disabled people into work, reduce the extra costs that disabled people face and reform the broken social care system. The need to tackle disability discrimination was mentioned explicitly in the Queen’s Speech but there was little information on…

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Girls with disabilities in developing countries are effectively unseen and unheard and are often not benefiting from international efforts to improve access to education in developing countries.

Source: Still Left Behind — Pathways to Inclusive Education for Girls with Disabilities | Leonard Cheshire Disability


Alzheimer’s Society is investing in three new research centres of excellence that aim to find ways to improve quality of life and care

Source: Funding alone won’t fix the social care system | Colin Capper | Social Care Network | The Guardian


“You help someone blossom as a Shared Lives carer, and they help you blossom too. They just become part of the family…”

 

That’s the view of carer Sue Cashmore, 59 years old from Shiregreen, who has been caring for adults in her own home for around 20 years. She’s part of the Shared Lives scheme, a community-based approach to supporting adults, where ordinary people open up their home and lives to support people through respite or live-in care.

 

Three adults with learning disabilities live with Sue, along with her husband and teenage daughter, and Sue says the experience has been good for all of them:

 

“You develop relationships with people. And if they are comfortable coming to you and you enjoy having someone in your home, you just feel good.

 

“The people who we support are all independent in their own way. They don’t all need 24/7 care and they’ve got their own thoughts and feelings. They do what they want to do, and you’ve got to encourage that.

 

“You’re not just helping them though – it brings out your own personality a bit more. They bring out the best in you and you bring out the best in them. And I think my daughters are better people for having people with learning disabilities live with us – they get a better understanding of things.”

 

Sue joins Sheffield City Council in calling for more people to become a Shared Lives carer. People are given

 

Source: Call for more Shared Lives carers to help people ‘blossom’ in Sheffield | Care Industry News


The disability rights movement changed my life. I have been benefiting from legislation fought for by disabled activists who came before me since I was a young child. Like Mike Ervin and various other activists, I am a former poster brat, a kid pimped out for profit by the machine that was MDA, While still cute enough to raise them tons of cash. For a long time, my identity was intertwined with what I thought I understood about my life as a disabled person.

I had grown up believing and being told that most if not all of us with neuromuscular disabilities would not survive into adulthood. There was no expectation on my life, so my doctors told me consistently that they had absolutely no idea of the outcome of my life. At the same time, I was internalizing the message I was supposed to be spreading in order to raise money for MDA, the idea that without a cure our lives are not worth living if we survive, at all. Jerry Lewis used the pity model for profit, to make MDA millions. They promised a cure…to make us “normal” and as children we took that to heart. Many of us thought of ourselves as not normal. We believed we were or at least all of our friends with neuromuscular disabilities would die young. For some, there was a belief of no point in attempting to have a future, because it was pointless if death was coming anyway.

Source: Defiant Lives is Essential Viewing, Though Problematic | Dominick Evans


Perfectly Peter

When considering which topic to cover next, it took about half a second to decide on SAFETY.  Yes, I deliberately typed that word in all caps.  It’s that important.  Amid the numerous concerns involved with autism, keeping your child safe is never far from your mind.  It is a constant; always there, always a source of stress and fear, and it can be crippling.  There are ways to battle this concern, though, to stay ahead of the dangers.  In this post, I will talk about the things we do in our family to keep Peter safe.

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A disabled women says she was left to sit in her own urine for nearly two hours after her plight was ignored by a healthcare professional carrying out a disability benefit assessment.

Maria Lane has spoken up about the “devastating” experience she endured during her personal independence payment (PIP) assessment, in the hope that other disabled people will not have to go through similar experiences.

She told – and showed – the assessor just 10 minutes into the assessment that she had had an accident and had emptied her bladder into her incontinence pad, and that urine was leaking into her trousers.

But she said the female assessor – who works for the government contractor Atos – “looked for a second at the pad” and then continued typing.

Atos has now launched an investigation.

For nearly two hours, she was forced to continue answering questions, with the assessor warning her whenever she failed to do so that if she did not respond she would have to return for another assessment.

Maria Lane has a number of long-term health conditions, including diabetes, osteoarthritis – which affects all of her joints and has spread into her spine – sciatica, a slipped disc, high blood pressure, and depression.

She is waiting for a major operation on her bladder, because of severe incontinence which means she has to wear pads permanently.

 

Source: Woman ‘forced to sit in her own urine for two hours’ by PIP assessor – Black Triangle Campaign


National disability charity, Sense, has responded to the General Election result, highlighting that whatever the makeup of the new government, policy makers must grasp the chance to reduce barriers to opportunity for disabled people, if it wishes to allow all people to realise their aspirations. Richard Kramer, Deputy CEO of National Disability Charity, Sense, said: “Although we have a hung parliament, there is a real opportunity for the new Government to make our society fairer, which is why it is vital that policy makers listen to the voices of disabled people and work towards levelling the playing field once and for all. “Disabled campaigners raised a number of key issues throughout the general election campaign, including the current social care crisis and recent disability welfare changes, which the Government must urgently address if it truly wishes to support the aspirations of disabled people throughout our country. “Disabled people deserve to live full and independent lives,

Source: New Government Must Make Society Fairer for Disabled People | DisabledGo News and Blog


Worcestershire County Council has been criticised by the Local Government and Social Care Ombudsman after a care home it contracted with charged a vulnerable

Source: Care home charges for care it could not prove it had provided | Care Industry News


Youth were enthused by last week’s general election, but having a disability means you feel even more excluded than other young people do. We need to be part of the conversation

Source: When will our politics start to address young disabled people? | Frances Ryan | Opinion | The Guardian

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