After A Year At Home, Children With Disabilities Deserve Priority Vaccination


Again persons with learning disabilities are getting a raw deal, why is this always so?

If not adukts it is children, why all this discrimination, for they are citizens as well and we should all be treated equally

Same Difference

They disappeared more than a year ago and many are still out of sight. When the pandemic hit, 53,000 under-18s in England with disabilities that made them vulnerable to coronavirus began to shield away at home.

Kept off school long after their classmates went back, and away from friends, they have found their childhoods put on hold. And while the vaccine rollout gave high-risk adults some reprieve in the new year, those aged under 16, who have not been eligible for any vaccine, are still living in limbo.

Yet we have barely heard a thing about disabled children’s plight through the coronavirus crisis – a silence that has not been helped by the faux-reassuring narrative that “no healthy child” has died from the virus. And now that the UK regulator has at last approved the Pfizer vaccine for 12- to 15-year-olds, this blind spot is becoming…

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Parents Fear For Pupils’ Mental State At £53,000 Fee School


This is all very worrying in any school let alone a special school for children with autism. I have had my doubts for sometime about CQC inspections, for they did not notice the abuses at Winterborne so can you really believe their inspection reports.

I inspections and reports need to be greatly improved for all concerned.

Same Difference

A private special needs school, whose directors include businessmen associated with the Winterbourne View care home scandal, has been accused of putting profit ahead of pupils’ needs.

Annual fees paid by councils to send pupils to Leaways School in east London are £53,000 – higher than Eton.

One parent told a BBC investigation she is pulling out her son as she fears for his mental state if he stays there.

However, Leaways denied the claims that it put money ahead of welfare.

In a statement, the school said: “We strongly refute the suggestion profit is ever put ahead of the needs of children.

“The vast majority of families are happy with our school and they see their children doing very well here.”

The school says it was “deeply saddened to hear the opinions of a small minority… of our parent and staff community”.

‘Sold a dream’

One is Donna, who…

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Sobbing mother describes ‘barbaric’ treatment of autistic daughter in hospital | Express & Star


Autism is a condition not an illness, so why are the NHS still looking after people with autism as though there is a health cure.

People with autism have difficulty dealing with changes of routine, so taking them from a safe home environment is not a way to deal with anyone showing autistic tendencies. For it is not a health cure that is required, but a change of direction by the health authorities to understand autism more and thereby understand each person with autism. For each person with autism is an individual and needs an individual approach, unfortunately health does not work like that and just uses an approach which is the same for everyone.

Putting persons with autism in these health institutions is nowhere the correct approach, as they need to be within the community, one that is part of them. Autism is not a mental problem, but the way the health authorities and then the general community is. Care in the community should have been the best approach, but true to form community care was never sufficiently funded and is still not along with many other areas including Social Care, which is also seriously underfunded.

The National Health Service and Community Care Act 1990 was supposed to have been the answer, but it would never be without the required sufficient funding.

Care and Treatments reviews were introduced in 2015, to alleviate some of the problems, but really it needs a complete overall and more importantly to be sufficiently funded.

Source: Sobbing mother describes ‘barbaric’ treatment of autistic daughter in hospital | Express & Star

UK needs £102bn boost to NHS and social care, says major report | NHS | The Guardian


Funding from higher taxes would cut avoidable deaths and improve equality after the Covid pandemic, yes it would, but with Social Care it can’t wait for over a decade for it needs its funding now, like yesterday.

COVID, if we did not know it already that England, even the whole of the UK needs Social Care like never before. The funding increase has to be now, before any more deaths take place.

The funding situation was bad enough before the start of austerity cuts in 2010, they made it much worse and now COVID has left Social Care so decimated that no one is safe.

To not do anything, shows that this Government has no consideration for anyone in need of Social Care, it is as though they are being left to fend for themselves and this they are unable to do, hence their need for Social Care.

To do nothing means that this Government has blood on its hands.

There is a petition, Solve the crisis in Social Care, https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care, Which needs your support

 

Source: UK needs £102bn boost to NHS and social care, says major report | NHS | The Guardian

A vision for the future of social care


I so agree, which is why I support the petition, Solve the crisis in Social Care, https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care

Further information can be found at https://1drv.ms/w/s!Aq2MsYduiazgo1VP3BeD4Qrpt0Xm?e=hHwlFU

This vision has been developed by people that draw on or work in social care and through extensive public audience research. It changes how people think about social care and builds public support for and optimism about investment and reform.

Our social care future

We all want a good life

We all want to live in the place we call home, with the people and things we love, in communities where we look out for one another, doing what matters to us.

Caring about each other

If we or someone we care about has a disability or health condition during our life, we might need some support to do these things. That’s the role of social care.

Drawing on support to live our lives in the way we want to

When organised well, social care helps to weave the web of relationships and support in our local communities that…

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Family Facing Deportation From Australia Because Of Son’s CP


I agree with you.

This is disgraceful that residency can be judged on the disability of a child and the related cost to Australia.

Yes, this is how it is in Australia today.

This is blatant disability discrimination, which I  would not have thought possible in such a progressive country as Australia. For this means it does not matter, what people have been doing in Australia, working there and producing wealth, not just for themselves, but also Australia, for when they have children and if they dared to have a child with disabilities, this could affect the decision whether they could stay in Australia. It shows that these parents have not been really valued by Australia, perhaps these parents should be able to claim from Australia a cost related to their time in Australia and the benefit Australia has had from them.

This is not what should be expected from, a so called, civilised country, as Australia, appears, to take what they want and then discard, when they feel there will be additional costs to Australia.

For this is totally disgraceful and Australia should be ashamed of themselves. This is a form of abuse, disability abuse.

Same Difference

I can’t describe how sad and angry I am after reading this. I have Cerebral Palsy and am a British Asian. I have grown up in the UK. I can’t imagine anything like this happening here. The fact that this child was actually born in Australia just makes the situation 1000 times worse in my eyes.

Australia’s disability discrimination commissioner has called on the immigration minister, Alex Hawke, to intervene “in a humane way” in a case in which a family is facing deportation because their six-year-old son has a disability.

On Tuesday night Ben Gauntlett was quizzed at Senate estimates about the plight of Australian-born Kayaan Katyal, and his parents, Varun and Priyanka, who are facing deportation after being rejected for permanent residency last month.

The ABC, which revealed the case on Sunday, reported that the family had been told in a rejection letter that Kayaan would cost…

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Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone.

 

 

Source: Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian

Covid 19 my vaccine experience.


I too have had the Pfizer BioNTech vaccine and now waiting for the second injection.

The first injection did not cause me any major problems, only had some numbness, on the next day, where the injection had been, but this had gone by the following day.

I have not rushed out thinking I was now safe, but continue to shield and will do until, at least, I have the second injection. Even then I will continue to stay safe, wear a face-mask when I go out and respect Social Distancing. I also wash my hand regularly throughout the day and certainly when I come back from medical appointments, the only reason I do leave home.

Until everyone has had the full course of injections I will not feel safe to go out.

I had the injection, not only because I believe in having injections and to safeguard myself, but also to safeguard others and do my bit to see that the effects and mutations of COVID-19 are substantially reduced or even eliminated. However, I do appreciate that I and others will need regular COVID injections, just like we do for the Flu. This is not to say COVID is like the flu, as it is very much worse and could cause long-term deliberating conditions in those who are not vaccinated.

I do have an adult daughter who has a severe aversion to needles and as she has Learning Disabilities and Autism does not have the capacity to understand anything about COVID-19.

So, until there is an alternative to the injection, such as a Nasal Spray she will be open to contract COVID-19, so I owe it to her to do all I can the ensure I will not be able to pass COVID-19 onto her.

The poor side of life

Yesterday I had my Covid 19 vaccination. I had the Pfizer vaccination and I really couldn’t wait for this day to arrive.

Most of you will know that my Covid 19 and Long Covid experience has been horrendous.

I first became ill with Covid 19 last April and I quickly became extremely unwell. You can read about this in my previous blog posts. I also developed Pneumonia and pleurisy and had numerous relapses.

To say that I was excited for my vaccine was an understatement, I can never forget how ill I have been and I certainly don’t want to catch it again. Not only do I have to think about myself I also have to think about my daughters wellbeing as well.

I was virtually bedbound for around a month except for the odd trip downstairs which completely exhausted me. As a result my illness really scared my daughter…

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Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities, especially in Wales. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone

Source: Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian

Frances Whiley: Another Sister Speaks For Her Brother With LD


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities, especially in Wales. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone.

Same Difference

Since the pandemic began more than a year ago, one of my greatest fears has been losing my brother, who lives in a care home. He is in his late 20s, is severely autistic and has epilepsy, as well as other complex needs. He is extremely vulnerable. According to Public Health England, people with severe learning disabilities are six times more likely to die from Covid-19 than the general population. In my brother’s age group, the 18-34 bracket, the death rate is 30 times higher.

Then there is the added risk of where he lives. According to the Office for National Statistics (ONS), living in a care home is a “major factor in the increased exposure of people with learning disabilities to Covid-19”. The communal nature of these facilities, combined with how much contact is required between care workers and residents – my brother needs help with everything, from…

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