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The system should be there to help, but in most instances it only hinders.

When things go wrong they blame the system and on the few occasions things go right the system is not mentioned as the success was not system based, but more likely it would be down to some good human intervention outside the ‘box’.

Unfortunately the processes do not get better as within in time, around age 14 years, transition will commence and that is another whole new venture which creates even more stress and tensions.

Then eventually you access adult social care, but again there is a system which in many aspects is not ‘fit for purpose’.

Unfortunately this is social care, education and health within the UK, hopefully it will improve, but I have been engaging with it for at least the last 40 years and I am still waiting. But then public bodies ate extremely slow to act.

I would suggest you try to find a good support group for at least you will then be with others who are experiencing the same.

I find you need to fight for everything and then occasionally you may see some light.

Teddie may well not be aware that he is different, but then we all are, it is just that some persons could be more different then others. But you need to come through for Teddie.

There are labels and I would suggest use them for your own and Teddies advantage, but be careful who you trust.

You will encounter many disappointments with the authorities, but you are not alone in this as this happens to all of us.

Life with a Bear

image1As the whole house was fast asleep last night (dogs included) I was wide awake annoyed about this letter we received!

Just short of a year ago Teddie was referred to CADU (child assessment & development unit) 11 months later we are still no further forward with no appointment in sight as the commissioning of the child Assessment & Development unit has temporarily been put on hold. 

How the hell can that be possible, how can children be made to wait that long only to be told the service has been put on hold because they want to make cuts, for a child to wait that long surely that shows a need for the unit??

I understand there is a process children have to go through in order to receive a diagnosis but why can’t the child’s paediatrician just be able to give a diagnosis, after all the referral has to come from them…

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Dentists warn that thousands of vulnerable people are wrongly being fined over dental treatment.

Source: ‘Go to the dentist and get fined £100’ – BBC News


This about time as no helpline should be subject to premium charges, lets hope any others will follow accordingly.

Now iron out all the problems re payments, assessments and any other aspects as these benefits are supposed to help claimants lead independent lives and not cause, upsets, stress, suicidal tendencies, more ill health, etc.

However, this may be the intended outcomes, especially when read inconjunction the the UN report from UN committee on the Rights of Persons with Disabilities which examined the government’s progress in fulfilling its commitments to the UN convention on disabled people’s rights. https://www.equalityhumanrights.com/en/our-human-rights-work/monitoring-and-promoting-un-treaties/un-convention-rights-persons-disabilities

Ipswich Unemployed Action.

Theresa May scraps universal credit helpline charges.

People will be able to call the government’s universal credit helpline without being charged, within weeks.

Prime Minister Theresa May said she had listened to criticism of the charges, which can be up to 55p a minute, and decided it was “right” to drop them.

But she again rejected calls by Labour leader Jeremy Corbyn to “pause” the roll-out of the controversial benefit amid fears it is causing hardship.

MPs are currently debating Labour’s call for a rethink.

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The minister for disabled people has again misled MPs, after she claimed that the UK had “volunteered” to take part in a public UN examination which concluded that her government’s disability policies had caused a “human catastrophe”. Penny Mordaunt was responding to Labour’s new shadow minister for disabled people, Marsha de Cordova, who told the Commons this week that the UN committee on the rights of persons with disabilities had “condemned” the government’s progress on disability employment. De Cordova had asked Mordaunt if the government would respond to those concerns. The committee’s “concluding observations” report, in August, examined how the UK had implemented the UN Convention on the Rights of Persons with Disabilities (UNCRPD). Among more than 80 recommendations for improvements – a record number for any country being examined by the committee – it was heavily critical of the UK government’s failure to take action to close the disability pay gap and the disability employment

Source: Mordaunt misleads MPs… again | DisabledGo News and Blog


MONTREAL/TOULOUSE, France (Reuters) – Airbus (AIR.PA) has agreed to take a majority stake in Bombardier’s (BBDb.TO) troubled CSeries jetliner programme, securing the plane’s future and giving the Canadian firm a possible way out of a damaging trade dispute with Boeing (BA.N).


Having sneered at the project for decades, many members of the anti-Brexit brigade are now draped in EU flags, says doctoral researcher Ragnar Weilandt

Source: From the continent, remainers’ sudden love for the EU looks like plain hypocrisy | Ragnar Weilandt | Opinion | The Guardian


A FORMER EU lawyer has warned the only deal Britain will get with the EU is “the full monty”, despite efforts by Theresa May to get Britain a bespoke deal with the EU.

Source: EU top dog says Britain WILL get a deal but Brexiteers will HATE it | UK | News | Express.co.uk


From golf courses to hotels to fashion, the sprawling brands of the president and his family have been taking hits since Election Day.

Source: Trump’s Presidency Is Bad for Business — His Own – NBC News


How much do you love your city? And what could be done to improve it as a place in which you work, rest and play?

Source: What do you really think about Sheffield? Fill in our survey – The Star


Philip Hammond backtracks after calling EU the enemy, but Brussels is clear Britain must make a better offer before talks can move on

Source: Brexit war of words heats up as ‘enemy’ EU tells Britain to pay up | Politics | The Guardian

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