Fury At ‘Do Not Resuscitate’ Notices Given To Covid Patients With Learning Disabilities


For this practice to have recurred in the second wave of the pandemic when it was highlighted in the first is extremely worrying, for it needs the dreaded phrase ‘lessons will be learnt’ to be utter again. For, lessons, it appears are never learnt, for to be learnt there must be a willingness to learn, from which it is evident that the willingness is not there, and I do doubt will ever be.

For this stems from the practice in health and many other areas for ‘we know best’ and that it is of no concern that patients and their families are not worthy of being considered.

This centres on the belief that the system is sacrosanct, and people affected are of no concern.

Whereas the person should be at the centre, self-centred care, should be central as the system should fit the person and not the person the system. If it is not possible to achieve then the system needs to be altered to ensure it is.

For, far too long health and also Social Care and other areas feel they are too important to change and therefore the person at the centre is virtually ignored.

If it was not for persons, then health and social care and other areas would not be required. Each person is different and therefore it should not be assumed the practice of ‘one fits all’ is how it should be.

All systems must be flexible to change as and when required with ease and quickly be adaptable.

Unfortunately, there is much disregard with people and organisations for the opinions of people who feel they need to be considered. But their opinions are important and should be listened to for they are endeavouring to make things better for everyone.

Same Difference

People with learning disabilities have been given do not resuscitate orders during the second wave of the pandemic, in spite of widespread condemnation of the practice last year and an urgent investigation by the care watchdog.

Mencap said it had received reports in January from people with learning disabilities that they had been told they would not be resuscitated if they were taken ill with Covid-19.

The Care Quality Commission said in December that inappropriate Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) notices had caused potentially avoidable deaths last year.Advertisementhttps://eb3ca1ecd275ae49142ae247f5e428af.safeframe.googlesyndication.com/safeframe/1-0-37/html/container.html

DNACPRs are usually made for people who are too frail to benefit from CPR, but Mencap said some seem to have been issued for people simply because they had a learning disability. The CQC is due to publish a report on the practice within weeks.

The disclosure comes as campaigners put growing pressure on ministers to reconsider a decision not…

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Will your complaint get heard as the Government forces the Parliamentary Ombudsman to curb its service?


This is yet another example of disgraceful behaviour from this Government and by all accounts many previous Governments.

The Ombudsman services should be there to right the wrongs in Central and Local Governments and also health administrations, so that the public can get justice, instead of the current injustices.

However, until the Government will allow them to do the required work and provide the required funding the Ombudsman’s will fall way short of what should be.

Westminster Confidential

Rishi Sunak: Postponing the cash to improve the Ombudsman service

The Parliamentary Ombudsman has already – as I wrote in an earlier blog – faced a critical report from MPs on the way it handles some of its work.

And Michael Gove, the Cabinet Office minister, has also turned down any prospect of new legislation to modernise the service by combining its work with the local government and social care ombudsman.

Not content with that, Rishi Sunak, the Chancellor, has now postponed a three year funding programme which would have allowed it to introduce changes to improve matters.

Instead The Treasury has decided to give it just one year’s worth of funding and instructed it to concentrate on handling complaints arising out of Covid 19 pushing aside other grievances..

Details of this latest bad news has not been put out in any press release by the Ombudsman but has been…

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George Osborne’s legacy is all around us: his cuts left Britain helpless to resist Covid | Conservatives | The Guardian


This is so true, but to date nothing has been done to reverse cuts, even a proportion of them.

It was wrong then and therefore is still wrong now and even today all Local Authorities (LAs) are having to find savings, for costs and demand for services are forever increasing, while the Government Grant is not in any realistic proportion. In reality there were no savings to be made and this has been proven by COVID in so many ways.

Virtually all LA services are suffering and Social Care was and is decimated. As Polly states the poor, sick and disabled, those who could least afford any cuts to services, were the ones to suffer most, leading in some instances to their deaths, especially when the changes to welfare benefits are taken into account. For to claim welfare benefits the eligibility was tightened and claimants were sanctioned for the least failure to abide by the ongoing stringent conditions related to payments and eligibility to benefits. The loss of a miniscule amount of benefit had enormous consequences for persons on benefits, who were most likely living on a day to day basis from one benefit payment to another. For some, even the benefits they received were insufficient to manage.

But LAs are not the only authorities suffering for Health Authorities are suffering too, for while they have been receiving some increased funding the increases are in no way sufficient to maintain services at a level required. In fact the funding for the UK needs to be seriously looked at and it has to be sufficient for the 21st century and buffers need to be maintained to cater for the unexpected, for COVID will not be the last.

Also, with the state of pay scales in the UK, this left many who are in employment unable to manage. Many jobs have been lost over the last few years and even though other jobs have been created these will, more than likely, be at the lowest rate of pay (National Living Wage or even the Minimum Living Wage for persons under 25 years) and maybe part-time rather than full-time. Whereas the starting point for pay should be the Real Living Wage.

LAs do obtain funding in otherways, one being Business Rates, but these are also decreasing due to the effects of lockdowns and COVID restrictions limiting businesses opening.

The UK has never been good at pay rates for those on the lower levels of pay and George Osborne and his cronies did their utmost to ensure these pay levels were kept low, especially when costs were increasing.

One does not need to be a genius to see that this is wrong and not sustainable for a healthy and prosperous UK and which is equal to all.

 

Source: George Osborne’s legacy is all around us: his cuts left Britain helpless to resist Covid | Conservatives | The Guardian

Covid’s Harmful Effect On Disabled People’s Activity Exposed By Survey


Again persons with disabilities are adversely affected through no fault of their own.

Disabled people are already not treated equally in UK society, even though there has been legislation to correct this. This includes the Disability Discrimination Acts 1995, and Disability Discrimination Act 2005, and Equality Act 2010, but much more needs to be done. The Government compound this in their attitude to disability benefits and now COVID, which has closed many opportunities for people, including disabled people to engage in sports, a lifeline for many disabled people to engage with.

Then there is the COVID vaccine programme which as only minimally looked at and provided priority to some disabled people, namely Downs Syndrome.

Much more needs to be done for any chance of equality to be gained, but this Government does not have a clue.

For they are also failing to act on Social Care, which many disabled people and others rely on to maintain life.

This is a Government of in-action when it comes to disabled people.

Same Difference

Covid-19 has reversed progress made in levels of activity among disabled people, according to a new report, amid concerns the gains may not be recovered because of the scarifying effects of the pandemic.

The observations come in the second Annual Disability and Activity Survey, which measures participation and attitudes towards physical activity among disabled people. Conducted by the disability charity Activity Alliance, it is seen as a companion to Sport England’s Active Lives study.Leading Paralympian says lockdown needs of disabled people ignoredRead more

The survey found that before the onset of Covid the number of disabled people who said they were physically inactive had fallen to 34%, down from 41% the year before. This corresponded with an 18% rise (from 40% to 58%) in the share of those who said they had “the opportunity to be as physically active as they want to be”. Following Covid, however…

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Katie Price: Harvey And Me


Anybody’s son or daughter moving on in life is a stressful and worrying situation, but even more so in respect of persons with autism and some other conditions. This is because parents and the children have spent years getting to know each other and now in a moment in time great change is occurring. Even when all is going smoothly, there is always going to be that deep down worry, what can happen next, have we covered everything and any others that may occur.

But life as to go on and nothing will ever be fully covered.

But with autism will the new surroundings and people within have sufficient knowledge to manage all that can occur and the answer is most likely not, all that everyone can do is the best available.

Same Difference

When faced with having to move their disabled child to a different school or college, families face difficult decisions. Now, reality TV star and ex-model, Katie Price, is on that journey with her eldest son, Harvey, who is about to make that transition.

It was a quiet 18th birthday for Harvey. There were balloons in the garden and presents were opened, including a frog lunchbox and an iPad. For a treat, Katie took him to one of his favourite places – the local train station.

“This is the best train ever. I love it,” Harvey says, taking photographs.

His birthday marks another milestone. It is time to leave school and find a college, a process the family has filmed for BBC One documentary, Katie Price: Harvey and Me.

“It’s pretty predictable to know what will happen with the other kids,” Katie says, who has four other children. “But with…

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‘Virus anywhere is virus everywhere’: Tony Blair calls for world to come together to fight Covid | The Independent


This is all well and good, but when Mr Blairs EU is acting as a spoilt child instead of being a competent and responsible organisation, not easy for the EU to do, but they need to try to be.

They need to own their own problems and not cast blame by diverting to others.

This is needed to ensure their own existence, a steep learning curve, but needs to be done.

 

Source: ‘Virus anywhere is virus everywhere’: Tony Blair calls for world to come together to fight Covid | The Independent

Vaccines. The United Kingdom v a “rules-based organisation”. | Conservative Home


Boris and his Government have made many mistakes leading to substantial failures during this COVID-19 pandemic, but the vaccine situation would appear to be the one and only success.

However, this does not discount the many failures.

Here it is the EU who have failed, but their over  bureaucratic nature means they are unwilling to accept their failure and thereby are causing alarm and concern to an independent country (UK) to overcome this failure.

This can’t be allowed to happen and therefore the EU will have to backdown, something which is not akin to them.

If we were still in the EU none of us would have had any COVID-19 vaccinations, let alone being an European leader.

Unfortunately, the EU will not countenance any UK successes, the EU is showing isolationism and putting the EU first above all others, now where have I heard and seen something similar, well would you believe it, 4 years of President Trump in the US.

 

 

 

 

Source: Vaccines. The United Kingdom v a “rules-based organisation”. | Conservative Home

How many more DWP deaths will there be?


The figures speak for themselves, so no one should be in any doubt about the intentions of this Tory and previous Tory Governments in their will to decimate the population of disabled people.

Yesterday 27 January 2021 was Holocaust Memorial Day and the Tories are as guilty as the Nazis, the Serbs and others in the massacre of sections of their community by numerous methods

insufficient funding of Social Care

insufficient funding of Community Care

Sanctions on benefit claimants

COVID-19 scandals in Care Homes

insufficient vaccine priority for persons with Learning Disabilities and/or Autism

and many others

Boris has stated he and his Government have done the best they can during COVID-19, well if that is their best I would not wish to see their worst

Then to ‘Cap It’ he stated the immortal phrase ‘Lessons would be Learnt’, well from my 71 years of experience of life I have never seen that lessons have been learnt, is this due to, not wishing to learn, no funding to learn, inability to learn or others I can’t really say, although I assume funding will play a big part, but in effect it could be a mixture of them all.

So, unfortunately I can’t see anyway learning can be improved, unless all of the above are reversed and them some.

Govt Newspeak

Mum, 27, took fatal overdose after litany of 28 failings in DWP benefit claim, I don’t call it failings I call it culpable manslaughter! Time and time again we saw death after death and the DWP refused to act or denied that there was a problem, whilst we saw death after death because of the DWP’s negligence. Sadly, I have written/reblogged many articles about DWP deaths and they never fail to upset me, mainly because my own husband truthfully admits he’d have been one of “collateral damage” if I hadn’t have fought tooth and nail for him

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Autism: ‘They Said Bleach Would Cure My Daughter’


What a difficult situation to be in for you would expect support from your family and/or your community regarding autism and the professionals to help you by sorting the misinformation from friends and community.

For autism is something that is not generally known about, well I did not. That was, until someone came to my place of employment to give a talk an autism.

I should explain, I was working at a day service for adults with learning disabilities and in this talk everything that was said I could see my own daughter and it gave me a great insight in explaining her behaviours and how to deal with them.

Eventually, after some lengthy deliberations with myself, that I decided that I wished to get a formal diagnosis. It was then I talked to my wife and eventually she agreed and then to discuss this with the appropriate authorities, who also eventually agreed and we then went on the waiting list.

Eventually the authorities advised that the they would commence the diagnosis process and the lengthy diagnosis process started and after some time an autism diagnosis was given.

This showed me how complex autism is in every way.

People are wary of the unknown and some can’t cope with it, so they put in place rituals and diversions so they can.

This could be why the BAME community put in place the reasonings they do.

But the professionals should be more aware of all the various situations and put in place facilities to help all concerned. But they do not and leave people to their ignorance and misconceptions and this makes life difficult for others who wish to understand more about autism.

Same Difference

“I’ve had people offer me products to ‘kill the autism’ – bleach, salts, supplements.”

For Yvonne Odukwe, a Nigerian living in Newport, community stigma around her daughter’s autism is a barrier – but it’s only half of a “double whammy”.

She and others say black, Asian and minority ethnic (BAME) people can also face poor engagement from authorities.

The Welsh Government said its national autism team “regularly engages with BAME communities” among other steps.

“It’s a double layer,” said Yvonne, mother of 19-year-old Jasmine.

“I’m fighting the mainstream and then I’m also fighting my community because they’re not accepting me and, in many cases, blaming and shaming me.”

Autism is a lifelong development disability which affects how people see, hear and interact with the world.

Yvonne, a mother-of-three, said that like many parents of autistic children, she’d had to fight to get Jasmine support, but many parents from backgrounds like…

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Cerrie Burnell: ‘Disabled People Have Been Shut Away During The Pandemic’


Starting from around the Victorian era Society’s attitudes towards persons with disabilities changed for before then, it was general that they would live with their families in their local communities. This is referenced in the book ‘Those they called IDIOTS by Simon Jarrett’, http://www.bbk.ac.uk/events/remote_event_view?id=18449, which traces the disabled mind from 1700 to the present day.

As you know we are in the COVID-19 pandemic and even though there are now vaccines which will help to combat the effects of COVID-19, it is currently unsure if the vaccines will stop you contracting COVID-19 and even then passing it on, for it is still early days and this still needs to be researched.

So, this pandemic will be with us for some considerable time, but hopefully to a lessor effect, that is unless a mutant strain or strains render the vaccines less effective. It will be possible to tweak the vaccines to overcome the mutant strains, but this will take some time.

It maybe that the vaccines are here to stay and to fully combat the mutant strains the vaccines will need to be taken on a regular basis, such as is the case for the flu vaccine.

The pandemic is, as stated in the article, having a dramatic effect on the learning disability community as they are more susceptible to contracting COVID-19 and more likely to suffer more serious consequences than some persons without disabilities, causing an increased death rates for persons with disabilities. This is in addition to the already poor death rates for persons with learning disabilities as highlighted in the LeDeR programme conducted by the University of Bristol, http://www.bristol.ac.uk/sps/leder/about/.

There are many aspects on how the lives of persons with Learning Disabilities are being effected in addition to those mentioned in this article, which will include Welfare benefits and the crisis in Social Care.

In both these instances the Current and previous Government’s attitudes to persons with disabilities and the state of Government funding needs to be taken into account.

For the latter there is the petition, Solve the crisis in Social Care, https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care, in which your support would be appreciated.

Same Difference

“As a disabled person you have to be so political every day,” says Cerrie Burnell, “just in how you go about your life; being joyful has to be a choice because you are told at the beginning that you’re not really welcome here or there is something wrong with you.”

Burnell, a former presenter on the children’s channel CBeebies was born without the lower part of her right arm. The subject of prejudice by some parents when she got the CBeebies job, Burnell – also an actor and writer – explores the origins of negative attitudes towards disability in a BBC Two documentary on Tuesday, Silenced: The Hidden Story of Disabled Britain.

Part of a BBC season marking the 25th anniversary of the Disability Discrimination Act (DDA), the programme asks why disabled people have been ostracised from society, charts the battle for rights and concludes that, despite the freedoms…

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