Why Is Basic Decency Towards Learning Disabled People Remarkable?


I agree, unfortunately caring and carers with regards to Social Care does not get a good press and the Governments attitude to Social Care goes a long way to put social Care in not a good light.

But for those who have a need for Social Care it is a very important lifeline.

As to doing your duty being treated as exceptional, well unfortunately this appears to be so as there are so many examples of bad care and in some instances very bad care.

Winterbourne was mentioned and even if this was the exception, then that would be bad, but it is not the exception, for bad care happens daily.

But a lot of it goes unreported as those in need of care and their family are scared of losing the care they have, no matter how bad it is.

I facilitate a Learning Disability Carers group and when the carers are talking I heard some instances of bad care, but they do not wish to allow me to take it further as they have been advised that the care would be withdrawn if they do, leaving them with no care at all.

I am a carers representative on our local Learning Disabilities Partnership Board and I have request a presentation from the Council run inspection teak, who should be inspecting Care Providers, for I believe they are not looking deeply enough into actual care delivery.

As to the CQC, I feel they spend to much time on looking at records, for anything can be written down, which may or may not mirror the actual care delivery.

So, I will start with the local council team and then ask for the CQC to present.

Care is in crisis for a large number of reasons, of which funding is a major concern.

For social Care has never been sufficiently funded from 1970, when it was brought under the control of local Authorities, and well before 1970. Then we had 10 years of austerity and now COVID-19 making the crisis even worse.

The reference to 1970 was when Social Care when brought under the control of Local Authorities (LAs) for before that it was a ‘mishmash’ of sources. Some LAs, but others included Charities, voluntary organisations, health and many others.

But as well as Funding there is

insufficient staff
abysmal pay
poor working conditions
unsocial hours
insufficient time
lack of training and skills
and others.

To many people caring is seen as an unskilled profession, well, if it is done badly then it is, but to provide good quality care is is far from it.

For, as we all are, persons in need of care are individuals and not objects, for they have feelings, they have choices, may need emotional support, routine to be followed, knowledge of a persons conditions, such as dementia, learning disabilities, autism and many others and in most cases a mixture of conditions.

So, in caring you can not, or should not, assume that caring for one person will be exactly the same as the next one and could need to change on a daily basis, or even more frequently.

So, it is a very skilled profession, for which the salary is nowhere sufficient, as caring has been left so short for far too long. Government promises have been broken so many times and social care has been left to sink, well sinking is not infinite and will come to a base from which it will not recover.

That base is very near and in some instances has been reached.

Action was urgently required, yesterday and certainly today, for tomorrow could well be too late.

Support for my petition, Solve the crisis in Social Care,

https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care

Same Difference

In late July 2019, I tweeted asking families with autistic or learning disabled children to share their experience of “sparkling” actions by health and social care professionals. I was writing a book about how professionals could make a difference in the lives of children and their families, and the manuscript was woefully negative.

The tweets started appearing and the thread grew across the next few weeks. They included extraordinary examples of what I came to call “pockets of brilliance”. An administrator who included pug memes in the appointment letters for a dog-loving young patient. Professionals who were prepared to sit on the stairs so a child could stay in their bedroom during a visit. The GP who told one mother: “I don’t know very much about autism, but I promise you that I will do all I can to learn.” Another GP who rang a mother in the evening after…

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Lockdown has brought families of learning disabled people to their knees | Learning disability | The Guardian


The support system so many rely on was struggling before the coronavirus crisis. Now it is truly broken

Source: Lockdown has brought families of learning disabled people to their knees | Learning disability | The Guardian

Don’t just clap for carers- Urgent calls for new deal for health and care employees | Care Industry News


Researchers from King’s Business School have published a paper urgently calling for a new deal for health and care employees that acknowledges and reflects their worth to our individual and communal well-being that has been highlighted by the Covid-19 pandemic. The paper says that the sector needs a new model of employment relations, characterised as fair care work, to tackle the challenges exposed by the crisis.

Source: Don’t just clap for carers- Urgent calls for new deal for health and care employees | Care Industry News

Invisible unpaid carers going hungry in lockdown


Many organisations, including the Government relate to Carers Allowance as the means for survival, however, for this to be achieved the Allowance needs to be substantially increased.

Currently, Carers Allowance is £67.25 per week and to qualify 35 hours of care needs to be undertaken. So, assuming only 35 hours per week is worked, but it will, most likely, be more, then the hourly rate is £1.93. This could be the only income the family carer is receiving, surely a more reasonable rate for Carers Allowance should be based on the National Living Wage of £8.72, so, on 35 hours per week the Allowance should be £305.20. Then when you start to draw the State Pension the Carers Allowance will stop.

If a Family carer is able to do some paid when then they are not allowed to earn more than £128.00. So, family carers who are not able to work, they are being penalised by only getting the current £67.25. So, for then the £305.20 is more realistic.

Again people relying on Social Care and their families are being left behind financially.

This is when Family Carers save the UK well over £130 billion a year.

This is in addition to the way paid carers are treated by this Government.

This Government wants Social Care on the cheap and if this is not changed with more realistic Central Government funding to Local Authorities for Social Care, then social Care in any realistic form could well disappear before too long.

But this Government and many previous Government do not and have not cared, where is their Duty of Care. This does not start and finish with the NHS, for Social Care and health are and will for ever being interrelated.

My petition, Solve the crisis in Social Care covers much of the above and other related issues.

https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care

For further information see, https://www.dropbox.com/s/74ckd926thbrlo8/Solve%20the%20crisis%20in%20Social%20Care%205.docx?dl=0

But will the Government listen and then take the required action, well from past experience I do doubt it, unless there is another, unexpected U-Turn.

Unpaid carers were isolated even before lockdown – now we’re invisible | Society | The Guardian


Around 6.5 million carers in the UK are propping up the NHS by keeping loved ones safe at home. Where is their recognition?

Source: Unpaid carers were isolated even before lockdown – now we’re invisible | Society | The Guardian

Social Care and the crisis it is in | Carer Voice


Social Care has been the forgotten health facility, well certainly by this Government and many previous Governments, for far too many years.  So, Social Care has been existing on budgets which are …

Source: Social Care and the crisis it is in | Carer Voice

Solve the crisis in Social Care ‹ Carer Voice — WordPress.com


You maybe wondering why I am still promoting this petition as we are in the Coronavirus, COVID 19 crisis and certainly now that Social Care is appearing to have some signs of recognition.

It is because of this recognition and I do appreciate the Government is concentrating on COVID 19, but Social Care has been forgotten for many years and certainly with regards to funding. I have been involved with Social Care, be it with regards to family or on a wider basis for over some 40 years and funding was always an issue and the last 10 years have has made the situation much worse.

So the recognition is an impetus on which to build and to ensure the recognition continues when COVID 19 has been overcome.

So here is how I am currently promoting the petition.

We all have reasons for reaching out and some of mine are mentioned below

As I am very concerned about Social Care could I also introduce you to my latest Petition, ‘Solve the crisis in Social Care’.

https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care

With the Government, Social Care is the forgotten service and Yes, the Government as plenty to deal with currently, but more should have been done for Social Care well before the COVID 19 situation.

 

Source: Solve the crisis in Social Care ‹ Carer Voice — WordPress.com

The financial toll of being a carer | Govt Newspeak


‘It’s just basic survival’: the financial toll of being a carer – The Guardian. From quitting a job to care for a spouse to supporting an ill parent, four carers explain how they cope.   Mary…

Source: The financial toll of being a carer | Govt Newspeak

More than 600 people quit work every day to care for older and disabled relatives : Welfare Weekly


More than 600 people a day are having to give up working to provide care for older and disabled relatives, leading to calls for the government and UK employers to increase support for family carers.

Research by the charity Carers UK found that 2.6 million have quit their job to care for a loved one who is older, disabled or seriously ill, with nearly half a million (468,000) leaving their job in the last two years alone – more than 600 people a day.

The startling figure represents a 13% increase since Carers UK and pollsters at YouGov surveyed members of the general public in 2013.

According to the findings, more working people are providing unpaid care for loved-ones than previously thought, with almost 5 million adults in the UK forced to juggle between their work and caring for family members.

 

Source: More than 600 people quit work every day to care for older and disabled relatives : Welfare Weekly

Sheffield City Council – Carers Improvement Forum


Carers Service Improvement Forum

Hi, I am Chris Sterry and I am a Carer representative on the Carers Service Improvement Forum (Carers SIF) and our next meeting should be on Wednesday 25 July 2018 at the Town Hall, Committee Room 2 from 10.30am to 12.30pm and thereafter at 2 monthly intervals, some previous minutes can be found here

I say ‘should’ as Sheffield City Council wish to cancel this meeting and any further meetings due to the lack of Carers attending.

By attending these meetings, you will have an opportunity to speak and see some Council Officials relating to Social Care within the City of Sheffield, the Director of Adult Social Care, Phil Holmes attends regular.  You will also have opportunities to discuss forthcoming changes within Sheffield City Council around areas relating to caring in Sheffield.

We have already lost one Service Improvement Forum, that being for Learning Disabilities which was done by subterfuge, do we really wish to lose the Carers SIF also.

I implore you to attend on Wednesday 25 July 2018 and show your appreciation for the Voice of Carers in Sheffield.

You may not classify yourself as a carer or may not like the term ‘carer’ but if you care for anyone, on an unpaid basis, within Sheffield you are entitled to attend any of the Carer SIF meetings. If you can’t attend these meetings, do not let your voice go unheard for you can contact myself on carervoice@gmail.com. I do have other email addresses, namely ldcarersbuttygroup@gmail.com, which I created for the Learning Disability Carers group I facilitate.

Even if you do not wish to do any of the above, please use your voice and either contact your Local Councillor or your MP.

I feel it is important to have a voice and unfortunately, currently, the facilities to have one are minimal, if the Carers SIF goes then that minimal will be further reduced.

Another voice for Carers in Sheffield is the Sheffield Carers Centre which is located on

Ground Floor East

Concept House

5 Young Street

Sheffield

S1 4UP

0114 2788942

Looking forward to seeing you on Wednesday 25 July 2018 from 10.30am to 12.30pm in the Town Hall Committee Room 2.

Thank you

Chris Sterry