Without Obamacare we could have been saying goodbye


I woke up one morning thinking of her and cried. I knew something was wrong. Still too stubborn to call her, I called my auntie and learned that my mother was scheduled for a biopsy because of a sizable lump in her breast. Soul connected.

I ran home to my mama. I booked a one-way flight to New Orleans, told my job that I wouldn’t be back until I knew she was ok and that they could do whatever they needed to in response. Thankfully, my board picked up the slack until I could return.

By the time my mama was diagnosed with breast cancer, I could see the lump in her breast without touching it. Like a lot of poor people, she waited until she was in significant pain before seeing a doctor. She’d never had stable health insurance before Obamacare so she always worried too much about cost.

Thanks to Obamacare she was able to stop worrying about the cost of her healthcare and focus on healing her body.

And she and I connected like never before. I stood by her side through numerous appointments. I used all the middle class lessons I’d learned since leaving home and advocated on her behalf for better care, shorter waits, more detailed information. I stood next to her every moment I could, and when doctors insisted that I needed t

 

Source: Without Obamacare we could have been saying goodbye:Daily Kos

She’s Mine, My Daughter with Autism


I sincerely love this post and wish you well this Mother’s Day. I have some understanding of your life experiences as, in some respects, this mirrors my own in helping my wife look after our 48 year old daughter for some 30 years of her life. It was a very steep learning curve for myself, but I love her as if I was her biological father, she is a real pleasure to look after and I am really lucky to have this opportunity in life.

2014-10-22 15.03.30

So I have this little girl, she’s mine. She’s wacky and wild. She’s vivacious and bold. She lives it up. She’s absolutely beautiful and when she speaks it’s the cutest thing I may have ever heard (aside from my other children speaking when they were little). She’s perfection in so many ways, a true miracle and part of an amazing story that is yet to be written.

She’s all these wonderful things and she is the most terrifying and challenging thing I have ever dealt with.

She came from the womb of a very young woman who came extremely close to ending her life through abortion. She was fed drugs and alcohol as she grew in this woman’s belly. And she was given to my husband and his late wife upon her birth. She was born with autism and a miraculous little brain that does not process things the way…

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Decision Maker Tells Mother Her Daughter’s Terminal Organ Failure Is ‘Your Opinion’


Same Difference

I found this heartbreaking story on the ATOS Miracles Facebook page. I usually share the links to Facebook statuses directly from Facebook, but this story is so heartbreaking that I don’t want to take the chance of anyone not being able to read it. Please share as widely as possible.

This mother talked to the Decision Maker last week and told him, “my daughter is dying from organ failure”. He said ‘that’s your opinion’. Her daughter had just been turned down for PIP for the third time. She has had a lifetime of health problems which have spread to many other illnesses. Aged 28 she now has end stage organ failure and will die without transplants. Whether a donor comes or not she is living the quality of life of someone at the end of their life. No PIP.

To anyone terminally ill your claim should get fast-tracked with a…

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Depressed mum drowned herself after being refused residential care for severely autistic daughter


This just shows the consequences of how social care decisions can relate to the real lives of the persons they are dealing with. In these situations social services or anyother equivalent body should not only listen to what is being relayed to them, but also understand the situations and then take the appropriate actions.

In this situation it is not clear if they were even listening, but there was no understanding and certainly no appropriate actions.

Will ‘ lessons be learnt’, I do not feel they will.

Now I Understand What My Child With Dyslexia Is Going Through


Original post from Understood

‘By Lyn Pollard

Student looking perplexed in class
I’ve been focused on my 9-year-old daughter’s dyslexia for years now. Since we found out she had a reading issue in kindergarten, I’ve spent a lot of time educating myself.I even wrote a personal essay for the New York Times about how I felt when I first learned about my daughter’s dyslexia. Now, as the Parent Advocacy Manager at the National Center for Learning Disabilities, I talk with parents across the country about how learning issues affect their children at home and at school.But as much as I talk, write and think about dyslexia and how kids like my daughter deal with it every day, I’ve never really walked in her shoes. When I was asked to try theThrough Your Child’s Eyes simulation of dyslexia, I jumped at the opportunity.It went something like this:

The letters are jumbled. The clock starts ticking. You can’t read the words. You feel stressed out almost right away.

You try to put words into context by reading the entire sentence, but you can’t. You have to decode. But until you flip the letters, you can’t figure out the words. It’s really hard to tell which letters are flipped.

The more frustrated you get, the more you want to give up. Is reading this even worth my time? What is it trying to say? What’s the point? Keep in mind this is only a 75-second exercise. And I’m not 9 years old.

And so it hits me. This is what it’s like for my daughter every time she reads.

No wonder.

No wonder the tears, the excuses and the tantrums when I ask her to read or do her homework. No wonder as much as she loves her reading tutor she is completely exhausted at the end of each session.

No wonder she cries and doesn’t want to go to school. No wonder she feels ashamed and has trouble making friends.

I may never fully know what she faces, but I get it much more now. It’s not just about dyslexia. It’s about what it’s like to struggle with something fundamental.

For my daughter, being understood means having the opportunity to reach her goals, both big and small. The more I understand about what it’s like to be in her shoes, the more I can help her achieve success in them.

Any opinions, views, information and other content contained in blogs on Understood.org are the sole responsibility of the writer of the blog, and do not necessarily reflect the views, values, opinions or beliefs of, and are not endorsed by, Understood.

About the Blogger

Lyn Pollard

Lyn Pollard More Posts by the Blogger

Lyn Pollard is a writer and mom to two kids who learn differently. She’s also the parent advocacy manager for NCLD. ……….’

Girl Forms Instant Bond With Teen That Looks Like Her.


Never give up hoping, for you do not know what the future will bring.

Original post from IJReview

When an 18-year-old teenager from Cape Town was told by friends that a new, younger student looked strikingly similar to her, she befriended the younger girl.

They had an immediate connection and bonded instantly. Like sisters.

According to the Cape Argus, when the younger girl told her parents about her new friend, they invited her to get coffee with the family.

As soon as the family met their daughter’s new friend everything made sense. The two bore a resemblance to each other and bonded like sisters because they were, in fact, sisters.

The older girl had once belonged to the parents of the younger girl, but she had been kidnapped shortly after she was born.

It was 1997, and Celeste Nurse had just given birth to a baby girl at a Cape Town hospital. She encountered a woman dressed as a hospital nurse sitting by her bed.

via Twitter/@JwanButimar

She drifted back to sleep but when she awoke again, her newborn was gone. In a previous interview she explained to Cape Times:

“When I woke up there was a nurse saying my child is gone. You can’t imagine the feeling,”

As it turns out, the baby had been kidnapped by the woman posing as a nurse.

And when Celeste and her husband Morne saw their daughter’s new friend, they immediately knew she was their long lost daughter. The girl’s aunt told Cape Talk:

“When she saw (her) yesterday, she knew, ‘This is my child.’ She said DNA wasn’t necessary, she just knew.”

DNA tests were given and what Celeste and Morne knew in their hearts to be true was indeed just that. It was their long lost daughter.

Photo cred: AFP/STRINGER

Photo cred: AFP/STRINGER

The woman who posed as a nurse is now facing kidnapping charges, along with fraud and pretending to be the girl’s biological mother.

via Twitter/@eNCAnews

Although the couple went on to have three more children after the kidnapping incident, they never lost hope that their daughter was out there somewhere. In fact, they threw her a birthday party on the date of her birth every year.

“I’ll never, ever give up hope. I can feel it in my gut — my daughter is out there and she is going to come home,” Morne proclaimed in an interview five years ago.

And five years later, she came home.

Finally reunited with their biological daughter, the Nurse’s birthday celebration will be a little different this year. Because this year, their daughter will be there to blow out the candles on her birthday cake.

Child mental health: A mother’s struggle


Original post from BBC News Health

An extract

‘…………..In the first ever children’s mental health week, a small survey reveals parents’ frustration with the support they get.

Parents like Sally Burke.

She has toughened up. She has had to.

She says: “I’ve become a very hard woman. I’m holding my emotions at arm’s length so that I can function.”

The change has been brought about by having to cope for more than two years with her daughter Maisie’s mental health problems.   ……………’

In Your Heart by Thomas S. Carver


Madamsabi's Blog

He was so proud of his little girl
It was her very first day of school
He walked with her to school that day
And she held his hand all the way
They walked together quiet and sad
A little girl and her loving dad
Into the school her father led
But he almost cried when she said
Daddy, Daddy please don’t go
Don’t leave me here all alone
I’ll miss you if you go away
And I might need you, can’t you stay
Little Daughter please don’t cry
You’ll be okay so dry your eyes
You have our memories in your heart
We’re together though we’re apart

image

He sat up front on her wedding day
And cried as his daughter walked away
Later that night he watched her dance
He sat there waiting for his chance
The band started to play their song
Father and daughter danced along
She…

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Man with too much money


Man not happy with his daughters choice of partner

Typical example of a man who has too much money and lives his life through his daughter. Surely, you have children so they can live their own life and not live their life through their parents.

Also, if such a man could be found to marry his daughter, what proof that she was no longer a lesbian could be found.

If I was his daughter I would find a man to marry, tell my father I was no longer a lesbian, marry the man and when he had obtained the money I would leave him and then go back to the person I truly loved. This I hoped would teach my father a lesson.