Dementia research must study care as well as cure : The Guardian


Social care faces an annual funding gap of £2.3bn by 2021 – by which time nearly a million people in the UK will be living with dementia. With no way to slow or stop the diseases that cause dementia, it is set to be the 21st century’s biggest killer.

While the NHS can’t offer people with dementia the same options as for other long-term conditions – because there is no cure or effective medical treatment – people with dementia must rely on the cash-starved and crumbling social care system. The social care and dementia crises go hand in hand.

Solving the care crisis goes beyond throwing money at the situation. Funding is desperately needed, of course, but we can’t simply pour more cash into a fundamentally flawed system. After decades of squeezed budgets and successive governments failing to put a long-term plan in place, we have a limited social care offering that too often leaves people with dementia footing the bill.

In the battle to meet rapidly rising demand with ever-shrinking resources, care providers must be as efficient and effective as possible. So why does investment in dementia research heavily focus on a cure for future generations, while less than 5% of funding goes to researching the best care possible for all those affected today?

The need for a cure for dementia is as pressing as ever, but we also need care research to develop practical solutions that can benefit people with the condition and their carers. Improving knowledge and practices among health and social care professionals, as well as the quality and inclusivity of the wider system, is just as important as developing medical treatments.

 

Source: Dementia research must study care as well as cure : The Guardian

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It’s time to tell the truth about dementia-By The Purple Angel founder | Care Industry News


Things you always wanted to know, or should know about dementia, but were too afraid to ask and healthcare professionals are sometimes too frightened to tell you to tell you.

Those with dementia MAY, and I have to STRESS, “” MAY “” show some of these symptoms

Confusion and repeated questions are very common; please remember they are not doing this to” WIND YOU UP”. Every time they ask a question it is the very first time they have asked it, according to them.

  1. Swearing and Anger; even though they may have never have sworn in their life, they just like you will have heard people swear many, many times. So they know the words and are very familiar with them. Try not to be so shocked, this may be a form of release because their inhibitions have changed.
  2. Inhibitions; some may start to walk around completely naked in front of others with no conscience whatsoever, they may also start to speak their mind and say exactly what they are thinking and feeling. They may be a lot sharper in tone and lose their temper quickly. This is all born out of frustration.
  3. 4. Violence; this is a tricky one but has to be spoken about, even the mildest mannered of people may lash out at loved ones and strangers. They may bite, scratch, nip punch, spit at you, kick out or worse, please remember it’s not them, but the disease.
  4. Incontinence; believe it or not on diagnosis many doctors and medical staff don’t raise the subject. Yes it does happen and for those affected it can have a bad impact on everyday life. Generally incontinence starts with small accidents, small damp patches etc and increases. Please remember the signal from the Bowel and the bladder has been disrupted and the person living with dementia has no idea that the need to ‘go’.

In all honesty, if they KNEW what was happening they would be MORTIFIED as would you, SO NO NEED TO CHASTISE AT ALL!!

  1. Frustration; Try to imagine you have this disease as in Lewy bodies, and knowing there is no cure, no remedies, and the chance is, you will forget ALL that you hold dear but you can do absolutely NOTHING about it.

Wanting to scream and shout is a huge understatement and why it often happens

 

Source: It’s time to tell the truth about dementia-By The Purple Angel founder | Care Industry News

What about the carers and loved ones presents at Christmas asks The Purple Angel founder | Care Industry News


Prolific on social media he spends his time talking about dementia, changing people’s opinions and furthering the course for people to live well with dementia. A fight that can only be won with public support.

The Purple Angel campaign is now recognised across the globe.

Norman or Norrms as he prefers to be called sent Care Industry News a comment on living with dementia and the people he works with; particularly at Christmas.

“I sit and often think that a lot of the time it’s the loved ones who miss out at Christmas, the carers and those who make sure we, with dementia, are ok, so how can we help at this special time? Well here`s one way I hope ….

“If you know someone who has dementia this Christmas and is living with a wife, husband, loved one, family member or carers please ask them what their spouse used to like or do etc. when they were younger.  This disease is all about short term memory but most of us can remember way, way back with clarity. Once they have told you, it might be something like favourite sweets, songs, singers etc.

“Then, all you have to do without the spouse, person who hasn’t got dementia etc. knowing is to go, out and buy that as a present, wrap it and put under tree and wait until Christmas day.

“Can you imagine the person with dementia giving such a present to a loved one, especially when it’s something they both used to do, or listen to, or cherish together?? And how amazing that would be? Imagine the look on their faces when they receive this and ask WHO GOT THIS?? And you say MY DAD did, or my MUM did or whoever has dementia did?? How wonderful would that be?

 

Source: What about the carers and loved ones presents at Christmas asks The Purple Angel founder | Care Industry News

IN MEMORY OF GLEN CAMPBELL


Please join WRAD in this

IN MEMORY OF GLEN CAMPBELL — WILL YOU JOIN US ??

WRAD “World rocks against dementia 2018 Will be held in memory of the late, great Glen Campbell who passed away this year of 2017, with the full blessing of his wonderful daughter Debby Campbell-Cloyd please see email.

Wayne Mesker and I, co-founders of WRAD, are so VERY PROUD to organise this in his memory and ask YOU ALL, no matter where you are, in whatever country across the globe to hold an event on this day and show the rest of the world we CAN and WILL beat this awful disease.

TOGETHER WE ARE STRONG

Please see e mail and instructions below and please contact Norman McNamara on norrms@gmail.com

(Two rr`s in Norrms plz )

And please share this post WORLDWIDE

Hiya, next years ” W.R.A.D ” World Rocks against dementia ” will be our

THIRD YEAR It will be held in memory of the late, great Glen Campbell who sadly passed away 2017 after being diagnosed with Dementia.It gives me HUGE Pleasure to say that his daughter Debby Campbell has given her FULL ENDORSEMENT of this and has sent us the following email.It’s an incredible honour to be given this by Debby and we are so grateful for it.

Here’s the statement from Glen Campbell’s daughter, Debby

Date: Sun, Oct 8, 2017 at 11:09 AM

Subject: Dedication

I am so happy to see that World Rock Against Dementia Day is dedicating event in honor of my Dad. Glen Campbell.

Thank you so much.

Debby Campbell.

“ROCK ” Is just a generic word for ALL types of music and we hope that next years WRAD will be bigger and better than ever. So many countries across the globe joined in on the day for the last two years events and we are hoping our third-year, March 24th 2018 we will have even more countries around the world joining us.

Here in the UK where I am based, I would like to ask yourself, and all you know, to put on an event on this day and raise funds for whatever charity organisation YOU WANT TOO. Yes !! I am not asking you to raise money for us, but to raise it for yourselves or whatever organisation you see fit !! All I would like you to do is let us know where the event is and a little about it so we can put you on our World map!! If you are OUTSIDE the UK please DO THE SAME and let us know what you are doing

March 2018 may seem a long way off but when organising an event it soon flies by, believe me lol, so please please hold an event, no matter how small, no matter how big, it can be a few of you round the table having a coffee listening to music, to an all ticket venue with groups and singers etc, the choice is yours, whatever suits you is fine by us, just make sure you have a great time and tell us all about it

Hope to hear from you very soon, Norrms Mc Namara

Founder of Global Purple Angel dementia awareness Campaign

https://www.purpleangel-global.com/ and co-Founder with ” Wayne Mesker ” USA ”

Of “WRAD ” WORLD ROCKS AGAINST DEMENTIA

https://www.facebook.com/WorldGoneRAD/?ref=br_rs

Nicola Sturgeon just shamed the UK government with some great news for disabled people | The Canary


The Scottish government has announced the extension of a scheme to support disabled people to live independently. It’s in stark contrast to the actions of the UK government. Actions which the UN has previously said amount to “grave” and “systematic” violations of disabled people’s human rights.

Forward thinking?

Nicola Sturgeon’s government has said it will be permanently extending the blue badge parking scheme in Scotland to cover the “carers and relatives” of people who “pose a risk to themselves or others in traffic”. This would cover people living with conditions such as dementia, autism, and Down’s syndrome. The move has come off the back of a pilot scheme launched in April 2016.

Currently in England [pdf], people generally only get a blue badge if they have difficulty walking more than 50m, or if they have other issues with physically getting around. But as Scotland’s Transport Minister Humza Yousaf said:

It’s so important that people with disabilities, including cognitive impairments, can live a life of equal opportunities.

He said of the pilot scheme and the working group involved with the blue badge reforms:

 

Source: Nicola Sturgeon just shamed the UK government with some great news for disabled people | The Canary

DWP Starts Search For PIP Claimants Entitled To More


This is good news for once and I would suggest that you be proactive and do not reply on the DWP to contact you.

We are all aware, especially taking into all the publicity given with regards to benefit assessments that you have to look after number one. If you feel there is the slightest possibility that you could be eligible for a benefit increase contact you local government DWP office. Alternatively, access a support group in your area. If you are unsure where these are this information could be available from your local authority, GP Surgery, other health areas and many others. If you have internet access then conduct an internet search, as it could well be in your interests to do so.

Govt Newspeak

 Benefits And Work

Seven months after it lost a personal independence payment (PIP) court case, the DWP has begun searching for claimants who should be getting a higher award. But many claimants, especially those who previously received no award, are likely to miss out.

Safety and supervision
Back in March 2017 the DWP lost a vital upper tribunal case relating to safety and supervision.

Until then, the DWP had argued that a claimant could only score points for being unsafe if harm was likely to occur on more than 50% of the occasions on which they attempted an activity.

A claimant who has epilepsy which causes seizures once or twice a week, for example, may not attempt to cook unsupervised because they know that if they have a seizure they could come to serious harm.

However, the DWP had been refusing to award points to claimants with epilepsy on…

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How to reduce the risk of cognitive decline with age – The Conversation


Research into how we can keep our brains healthy as we age has gained momentum in recent years. There is now an increased focus on the changes that we can makes to our health and lifestyle, which may prevent dementia. Here are some things that research has shown reduce a person’s risk of cognitive decline with age.

Sex

Our latest study shows that having more sex is associated with better cognitive function.

We recruited 28 men and 45 women, aged between 50 and 83, to take part in our study. We found that those who had sex weekly scored on average 2% higher on some cognitive tests than those who had sex monthly, and 4% higher than those who never had sex. These results were shown on tests of verbal fluency (such as naming as many animals as possible in one minute) and visuo-spatial abilities (drawing familiar objects from memory or copying complex pictures).

The association could be the result of the heightened levels of intimacy and companionship inherent in sexual relationships (that is, an increase in social contact), or there could be a purely biological explanation – where regular surges in arousal and release of sex-related hormones

Source: How to reduce the risk of cognitive decline with age

Shock as government CUTS welfare for Dementia sufferers: told they have to “care for themselves”


Pride's Purge

Until now, Theresa May’s government seems to have put an invisible ring-fence around dementia when it comes to social security, welfare and benefits cuts.

Probably because, in the main, sufferers of dementia tend to be pensioners – who also happen to be the most important demographic for the Conservative Party when it comes to support.

In fact, as opposed to other sufferers of illness or disability who have been decimated by Tory welfare cuts without a peep of sympathy, Tory MPs are extremely keen to show support for dementia sufferers.

Theresa May herself is an official supporter of ‘Dementia Friends‘ – an initiative by the Alzheimers Society which seeks to increase awareness from MPs and other decision makers:

So it’s a bit of a shock to see dementia sufferers are the latest sufferers of illness and disability to be targeted by Theresa May’s savage cuts to the welfare…

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