Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities, especially in Wales. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone

Source: Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian

Frances Whiley: Another Sister Speaks For Her Brother With LD


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities, especially in Wales. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone.

Same Difference

Since the pandemic began more than a year ago, one of my greatest fears has been losing my brother, who lives in a care home. He is in his late 20s, is severely autistic and has epilepsy, as well as other complex needs. He is extremely vulnerable. According to Public Health England, people with severe learning disabilities are six times more likely to die from Covid-19 than the general population. In my brother’s age group, the 18-34 bracket, the death rate is 30 times higher.

Then there is the added risk of where he lives. According to the Office for National Statistics (ONS), living in a care home is a “major factor in the increased exposure of people with learning disabilities to Covid-19”. The communal nature of these facilities, combined with how much contact is required between care workers and residents – my brother needs help with everything, from…

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Fury At ‘Do Not Resuscitate’ Notices Given To Covid Patients With Learning Disabilities


For this practice to have recurred in the second wave of the pandemic when it was highlighted in the first is extremely worrying, for it needs the dreaded phrase ‘lessons will be learnt’ to be utter again. For, lessons, it appears are never learnt, for to be learnt there must be a willingness to learn, from which it is evident that the willingness is not there, and I do doubt will ever be.

For this stems from the practice in health and many other areas for ‘we know best’ and that it is of no concern that patients and their families are not worthy of being considered.

This centres on the belief that the system is sacrosanct, and people affected are of no concern.

Whereas the person should be at the centre, self-centred care, should be central as the system should fit the person and not the person the system. If it is not possible to achieve then the system needs to be altered to ensure it is.

For, far too long health and also Social Care and other areas feel they are too important to change and therefore the person at the centre is virtually ignored.

If it was not for persons, then health and social care and other areas would not be required. Each person is different and therefore it should not be assumed the practice of ‘one fits all’ is how it should be.

All systems must be flexible to change as and when required with ease and quickly be adaptable.

Unfortunately, there is much disregard with people and organisations for the opinions of people who feel they need to be considered. But their opinions are important and should be listened to for they are endeavouring to make things better for everyone.

Same Difference

People with learning disabilities have been given do not resuscitate orders during the second wave of the pandemic, in spite of widespread condemnation of the practice last year and an urgent investigation by the care watchdog.

Mencap said it had received reports in January from people with learning disabilities that they had been told they would not be resuscitated if they were taken ill with Covid-19.

The Care Quality Commission said in December that inappropriate Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) notices had caused potentially avoidable deaths last year.Advertisementhttps://eb3ca1ecd275ae49142ae247f5e428af.safeframe.googlesyndication.com/safeframe/1-0-37/html/container.html

DNACPRs are usually made for people who are too frail to benefit from CPR, but Mencap said some seem to have been issued for people simply because they had a learning disability. The CQC is due to publish a report on the practice within weeks.

The disclosure comes as campaigners put growing pressure on ministers to reconsider a decision not…

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Unlawful Do Not Resuscitate Orders For Disabled Covid Patients ‘Outrageous’ : Forbes : The Learning Disabilities Daily


The coronavirus pandemic has seen an unprecedented rise in doctors placing unlawful Do Not Resuscitate orders on the medical records of people with learning disabilities. Many disabled people also fear they would be placed at the back of the queue if there was a shortage of hospital ventilators.

Source: Unlawful Do Not Resuscitate Orders For Disabled Covid Patients ‘Outrageous’ : Forbes : The Learning Disabilities Daily