It’s my body and my health so why can’t I be the legal owner of my medical record? This important question was debated during a series of webinars run by The BMJ on patient access to medical records.1 Most of those involved agreed that we should be able to access all data that’s held on us, including our full medical records, but the ownership question was more contentious.
Many webinar participants saw record ownership as key to rebalancing healthcare in a more person centred direction, empowering patients to take more control of their health and data. They argued that ownership would deliver benefits in terms of the ability to control access, to check and correct errors, to record health goals and concerns, and to monitor usage through an electronic audit trail.
Others asserted that most people don’t want the responsibility of holding, managing, and maintaining their records, as long as they can access them when they need to. Some felt that defining ownership of electronic data are impossible anyway and must not be used as a ploy to derail patient access to their records, which is more important.
Patients in the UK have had a right to view, but …
Yes, I want to see my health records not at a specific time, but as and when I wish to, so I have requested access with my GP practice, to be told access is not currently available due to safeguarding reasons. What the specific safeguarding reasons are I have not been told and no likely date when access will be granted, this I feel is an unreasonable situation, so ownership is a prime concern to me.
Is it my safeguarding or the practice.
Surely there is an infringement of my Human Rights and if it is not, it should be.