Carers Voice ‘Working Together’ : LD Carers Butty Group — WordPress.com


For the last 18 months 3 Family Carers of relatives with Learning Disabilities and/or Autism (Chris Sterry, Judith Gwynn and Kate Chapman) have been working together with a PHd student (Rachael A Black) at the University of Sheffield (Department of Human Communication Sciences) using the framework of Co-production. This was initially to provide research for Rachael’s thesis required for her PHd, but also to have a meaningful outcome for LD Carers within Sheffield, UK

At the start of this co-production Rachael enquired through Sheffield Mencap & Gateway for carers of persons with Learning Disabilities to work with her on her PHd project.

During the last 18 months we have had regular meetings at the University of Sheffield on how we would proceed with this project and what our initial outcomes would be. Initially through general discussions, which Rachael was recording, it became clear that the recurring situations was around carers communications with the range of Service Providers. Within the context of Service Providers it included Sheffield Adult Social Care

 

Source: Carers Voice ‘Working Together’ :  LD Carers Butty Group — WordPress.com

Sanctioned for not being able to sign on on bank holiday Monday. Tears, frustration and rain.


The poor side of life

Today’s demo started rather hurriedly and to be honest I didn’t know if I was coming or going. This feeling was amplified because it was cold, rainy and my daughter was a bit fed up. understandable of course. But she soon settled down into our usual routine and all was well.

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We are seeing a lot of new faces due to Stalybridge Jobcentre shutting. They don’t know us and what we are doing, and we don’t know them or their situations either. So we have to start from scratch, which at times isn’t easy.  But it’s a whole lot harder for them.

I started a conversation with a man who had been previously attending Stalybridge Jobcentre for his appointments. The first thing that he said to me was that he couldn’t believe how rude the front desk staff are at  Ashton Jobcentre, and how rude some of the advisors are also…

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Taking advantage


Unfortunately this is a fact of life for many people, such as yourself, as in certain circumstanses you will be taken advantage of and for granted by some others. While not all persons will do this, as you have experienced, some will and there is no way of knowing who will until you experience it.

It is easy to say, do not let this get you down, but you do have to consider yourself, so always be wary of others.

Five Things About Autism I Wish Someone Had Told Me


Original post from life with greyson + parker

An extract

‘Most of my grown up life already didn’t look anything like I expected it to. And then along came autism and really flipped our world upside down. I heard so many different perspectives on autism from different professionals and parents: This is going to be so hard on your marriage. You are the only person who will advocate for your child. The world is full of judgement- people stare and comment on your parenting skills. Over and over I heard these exact same statements, so I accepted them as truth.

I was scared and depressed about how bleak the rest of our life clearly was going to be. I was frightened my sons would never know happiness. Scared my marriage would crumble from the stress. Scared of everything really.

But now that our own life has unfolded, I realize that many of these truths do not have to apply to us, and the ones that do- that is not where we put our focus. Life is hard, yes-  but it is also too good and too short to miss out on all the blessings it holds. Here are five good things that people don’t tell you about raising a child with autism.  …………..’