Lancaster University intranasal vaccine offers promise to block COVID-19 where it starts | Lancaster University


Research by Lancaster University scientists to create a COVID-19 vaccine which can be administered through the nose has taken a significant step forward.

Source: Lancaster University intranasal vaccine offers promise to block COVID-19 where it starts | Lancaster University

Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone.

 

 

Source: Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian

Covid 19 my vaccine experience.


I too have had the Pfizer BioNTech vaccine and now waiting for the second injection.

The first injection did not cause me any major problems, only had some numbness, on the next day, where the injection had been, but this had gone by the following day.

I have not rushed out thinking I was now safe, but continue to shield and will do until, at least, I have the second injection. Even then I will continue to stay safe, wear a face-mask when I go out and respect Social Distancing. I also wash my hand regularly throughout the day and certainly when I come back from medical appointments, the only reason I do leave home.

Until everyone has had the full course of injections I will not feel safe to go out.

I had the injection, not only because I believe in having injections and to safeguard myself, but also to safeguard others and do my bit to see that the effects and mutations of COVID-19 are substantially reduced or even eliminated. However, I do appreciate that I and others will need regular COVID injections, just like we do for the Flu. This is not to say COVID is like the flu, as it is very much worse and could cause long-term deliberating conditions in those who are not vaccinated.

I do have an adult daughter who has a severe aversion to needles and as she has Learning Disabilities and Autism does not have the capacity to understand anything about COVID-19.

So, until there is an alternative to the injection, such as a Nasal Spray she will be open to contract COVID-19, so I owe it to her to do all I can the ensure I will not be able to pass COVID-19 onto her.

The poor side of life

Yesterday I had my Covid 19 vaccination. I had the Pfizer vaccination and I really couldn’t wait for this day to arrive.

Most of you will know that my Covid 19 and Long Covid experience has been horrendous.

I first became ill with Covid 19 last April and I quickly became extremely unwell. You can read about this in my previous blog posts. I also developed Pneumonia and pleurisy and had numerous relapses.

To say that I was excited for my vaccine was an understatement, I can never forget how ill I have been and I certainly don’t want to catch it again. Not only do I have to think about myself I also have to think about my daughters wellbeing as well.

I was virtually bedbound for around a month except for the odd trip downstairs which completely exhausted me. As a result my illness really scared my daughter…

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Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities, especially in Wales. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone

Source: Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities | Coronavirus | The Guardian

Frances Whiley: Another Sister Speaks For Her Brother With LD


Yet again persons with learning disabilities, (LD), are, apparently, going unnoticed by the UK Authorities, especially in Wales. This is in spite of a report in November 2020 from Public Health England,  which showed that people with learning disabilities were three to six times more likely to die from covid-19 than the general population during the pandemic’s first wave

This is when, before COVID-19, the risk of persons with LD dying earlier than persons without LD is well known and the reason the LeDeR programme with the University of Bristol, is being researched, which started on 1 July 2016 and is funded by NHS England.

So, why with all the above are persons with LD being ignored and even worse, if they went into hospital could well have a DNR (Do not resuscitate), placed on their record.

It would appear all is against persons with LD, but why?

Do these authorities feel the right to life of persons with LD should be ignored, if this is correct, then this is a very dangerous and very worrying premise, for to believe, this is how exterminations start, just look at Germany in the 1930/40s.

This needs to be stopped forthwith for persons with LD have as much right to life as anyone.

Same Difference

Since the pandemic began more than a year ago, one of my greatest fears has been losing my brother, who lives in a care home. He is in his late 20s, is severely autistic and has epilepsy, as well as other complex needs. He is extremely vulnerable. According to Public Health England, people with severe learning disabilities are six times more likely to die from Covid-19 than the general population. In my brother’s age group, the 18-34 bracket, the death rate is 30 times higher.

Then there is the added risk of where he lives. According to the Office for National Statistics (ONS), living in a care home is a “major factor in the increased exposure of people with learning disabilities to Covid-19”. The communal nature of these facilities, combined with how much contact is required between care workers and residents – my brother needs help with everything, from…

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Fury At ‘Do Not Resuscitate’ Notices Given To Covid Patients With Learning Disabilities


For this practice to have recurred in the second wave of the pandemic when it was highlighted in the first is extremely worrying, for it needs the dreaded phrase ‘lessons will be learnt’ to be utter again. For, lessons, it appears are never learnt, for to be learnt there must be a willingness to learn, from which it is evident that the willingness is not there, and I do doubt will ever be.

For this stems from the practice in health and many other areas for ‘we know best’ and that it is of no concern that patients and their families are not worthy of being considered.

This centres on the belief that the system is sacrosanct, and people affected are of no concern.

Whereas the person should be at the centre, self-centred care, should be central as the system should fit the person and not the person the system. If it is not possible to achieve then the system needs to be altered to ensure it is.

For, far too long health and also Social Care and other areas feel they are too important to change and therefore the person at the centre is virtually ignored.

If it was not for persons, then health and social care and other areas would not be required. Each person is different and therefore it should not be assumed the practice of ‘one fits all’ is how it should be.

All systems must be flexible to change as and when required with ease and quickly be adaptable.

Unfortunately, there is much disregard with people and organisations for the opinions of people who feel they need to be considered. But their opinions are important and should be listened to for they are endeavouring to make things better for everyone.

Same Difference

People with learning disabilities have been given do not resuscitate orders during the second wave of the pandemic, in spite of widespread condemnation of the practice last year and an urgent investigation by the care watchdog.

Mencap said it had received reports in January from people with learning disabilities that they had been told they would not be resuscitated if they were taken ill with Covid-19.

The Care Quality Commission said in December that inappropriate Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) notices had caused potentially avoidable deaths last year.Advertisementhttps://eb3ca1ecd275ae49142ae247f5e428af.safeframe.googlesyndication.com/safeframe/1-0-37/html/container.html

DNACPRs are usually made for people who are too frail to benefit from CPR, but Mencap said some seem to have been issued for people simply because they had a learning disability. The CQC is due to publish a report on the practice within weeks.

The disclosure comes as campaigners put growing pressure on ministers to reconsider a decision not…

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The Crown’s Learning Disability Storyline Highlights Painful Lack Of Progress


This is indeed very worrying and in this day and age you would or should expect that it does not occur, but it does.

A few years ago Care and Treatment Reviews (CTRs) were introduced in England by NHS England, and I did start the training to be one of the ‘Experts by Experience’, but, I had to withdraw as I came to the conclusion that I did not have sufficient spare time capacity to do effectively, the work required.

I am, however, aware of some persons who went through the training and became ‘Experts by Experience’. When asked to do reviews these can be anywhere within England and may require the need to have overnight stays if the review is some distance away from where the ‘Expert by Experience’ resides.

In theory these reviews are a very welcoming practice and hope in practice that they hold up to be.

When persons with Learning Disabilities and/or Autism are committed into one of these Special Hospitals, it should have been for a short period of time, but in practice, before the ‘CTRs’ were introduced, but in practice his was not so. As once in it was extremely difficult, if not bordering on the impossible to be discharged, so I do hope the CTRs are effectively being used to minimise this practice.

Perhaps Experts by Experience, if they are willing to do so, could comment.

Same Difference

There are 1.5 million learning disabled people in the UK, but they are rarely seen or heard from. Little is spoken of this demographic of people, who in many cases completely rely on others in order to live.

Unless you’re a family carer or professionally involved, you may not know or have regular contact with any learning disabled people.

However, in episode 7 of the latest season of The Crown, viewers learn more about the royal family and learning disabled people. Peter Morgan, creator of the series, writes about two learning disabled women, Nerissa and Katherine Bowes-Lyon.

In Morgan’s fictional depiction, Princess Margaret and the Queen discover that Katherine and Nerissa, their cousins on their mother’s side, are still alive, despite being listed as dead in Burke’s Peerage, and have spent their adult lives in an “institution for mental defectives”.

Despite being born into wealth and privilege, Nerissa and…

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The Celebration of the life of Zoe Angella Sterry


Celebration of the Life of Zoe Sterry

Zoe Angella Sterry

Zoe Angella Sterry was the wife of Chris Sterry, the originator of this Post, and he lost his wife in the early hours of the morning of Saturday 26 September 2020 and her funeral took place on Friday 16 October 2020.

Chris started seeing Zoe in August 1983 and they were married on 4 October 1988, so, in total they had 37 years together, in which 32 years they were married.

Chris did not have any children of his own, but looked after Zoe’s children, David, Katie and Rachel as his own, together with their 3 grandchildren Oliver, Frankie and Luke, not forgetting the latest addition Theo as a Great Grandchild. She also had a younger brother Calvin.

Zoe was a formidable lady, with a big heart and an enormous amount of love. She had a very strong personality and enormous strength of character and would express her opinions to anyone, especially to Sheffield City Council (SCC), whom she had to deal with on behalf of Katie, who had multiple physical disabilities, severe Learning Disabilities, through Cerebral Palsy and also Autism.

Together Zoe and Chris fought with SCC for Katie, which Chris will now do alone.

Zoe and Chris created a very strong partnership and Zoe will be sadly missed by, not only him, but all who came into contact with her.

There is a webcam of the funeral service and the details to access can be seen below and the link will be live for 7 days from the 16 October 2020

NameMrs Zoe Angella Sterry
LocationGrenoside Crematorium, Sheffield – South Chapel
Date & TimeFriday 16/10/2020 12:30
Event Number830579
RequesterLiz Cousins – Tomlinson & Windley

https://www.wesleymedia.co.uk/webcast-view
Login / Order ID: 50539
Password: kadcavmg

Please read through the attached step by step document before using the webcasting service to ensure your system is compatible.

Thanks,

Wesley Media Team

Zoe Angella Sterry

Step by Step document

Please see below the Order of Service

Order of Service

The body of Zoe is now no more, but the memories live on

So does the dealings with SCC for Katie.

At least it will keep Chris busy.

Thank you

Lockdown has brought families of learning disabled people to their knees | Learning disability | The Guardian


The support system so many rely on was struggling before the coronavirus crisis. Now it is truly broken

Source: Lockdown has brought families of learning disabled people to their knees | Learning disability | The Guardian

Coronavirus: Helping Those With Autism During Lockdown


Routine is important for all of us, but for persons with autism it is even more so as routine is part of their coping process.

So, the closure of restaurants will have a major impact on someone with autism.

For staff to be able to handle these situations just shows what skills these staff have and these skills will go un-noticed on many occasions. These are the same staff who are classed as unskilled, which they clearly are not. But their remunerations do not take these skills into account and many may be on the National Living Wage, the minimum people over 25 have to be paid. They should be on a starting salary of the Real Living Wage, as put forward by the Living Wage Foundation, https://www.livingwage.org.uk/what-real-living-wage

However, when this was raised with the Secretary of State for Health and Social Care, Matt Hancock by SNP Shadow Health Secretary Dr Philippa Whitford MP when she urged Matt Hancock to roll-out the Real Living Wage to all care workers – like has been the case in Scotland for many years – and reverse the 20% cut to public health funding imposed by the Tories in 2015.

In his response, Matt Hancock said that health care workers already receive the living wage – lower than the Real Living Wage – and completely failed to address Dr Whitford’s point on reversing cuts.

This proves where the Government really is and it is not with Care Workers in the Care Profession. For Matt Hancock was stating that Care Workers were on the National Living wage and not the Real Living Wage, but was playing on the words ‘Living Wage’ just to confuse the issue, in reality a difference of some 58p per hour and that is assuming the care workers are 25 or over, if they are 21 and over their guaranteed rate is only £8.20 and if the are under 21 the rate will be even lower. Also only the Real Living Wage has a weighting for London, who are recommended to receive £10.75 as opposed to £9.30 for the rest of the UK.

So, do not trust what you hear from the Government, especially Government Ministers.

I do not trust this Government, but then I do not trust any Governments and have not done so, for at least the last 40 or so years.

It was because of this lack of trust that I created the petition, Solve the crisis in Social Care’, which is addressed to both Matt Hancock and the Prime Minister Boris Johnson.

So, please see the information I have prepared on https://www.dropbox.com/s/74ckd926thbrlo8/Solve%20the%20crisis%20in%20Social%20Care%205.docx?dl=0
or go straight to the petition on https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care

Social Care really is in crisis and was long before COVID 19 so, Social Care really needs YOU and so does this petition

Same Difference

Like so many people with autism, lockdown rules have only added to the challenges Matthew Russell faces.

A trip to McDonald’s or the local pub had not only become a treat, but a key part of a settled weekly routine.

However, the coronavirus outbreak has taken away those routines, causing distress and anxiety for many.

So staff at an autism centre in south Wales have come up with ideas to help maintain structure, including a replica drive-through burger restaurant.

Support workers at Glamorgan House in Neath were eager to help those with autism get through the restrictions.

With the help of a local McDonald’s restaurant that was closed during the lockdown, staff sourced packaging and cups for an authentic experience as well as making their own uniforms by hand.

“As soon as we began serving up meals there were smiling faces all around and orders were flying in,” said senior…

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