The Crown’s Learning Disability Storyline Highlights Painful Lack Of Progress

This is indeed very worrying and in this day and age you would or should expect that it does not occur, but it does.

A few years ago Care and Treatment Reviews (CTRs) were introduced in England by NHS England, and I did start the training to be one of the ‘Experts by Experience’, but, I had to withdraw as I came to the conclusion that I did not have sufficient spare time capacity to do effectively, the work required.

I am, however, aware of some persons who went through the training and became ‘Experts by Experience’. When asked to do reviews these can be anywhere within England and may require the need to have overnight stays if the review is some distance away from where the ‘Expert by Experience’ resides.

In theory these reviews are a very welcoming practice and hope in practice that they hold up to be.

When persons with Learning Disabilities and/or Autism are committed into one of these Special Hospitals, it should have been for a short period of time, but in practice, before the ‘CTRs’ were introduced, but in practice his was not so. As once in it was extremely difficult, if not bordering on the impossible to be discharged, so I do hope the CTRs are effectively being used to minimise this practice.

Perhaps Experts by Experience, if they are willing to do so, could comment.

Same Difference

There are 1.5 million learning disabled people in the UK, but they are rarely seen or heard from. Little is spoken of this demographic of people, who in many cases completely rely on others in order to live.

Unless you’re a family carer or professionally involved, you may not know or have regular contact with any learning disabled people.

However, in episode 7 of the latest season of The Crown, viewers learn more about the royal family and learning disabled people. Peter Morgan, creator of the series, writes about two learning disabled women, Nerissa and Katherine Bowes-Lyon.

In Morgan’s fictional depiction, Princess Margaret and the Queen discover that Katherine and Nerissa, their cousins on their mother’s side, are still alive, despite being listed as dead in Burke’s Peerage, and have spent their adult lives in an “institution for mental defectives”.

Despite being born into wealth and privilege, Nerissa and…

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GPs reject merger ‘driven by NHS England’ | HSJ Local | Health Service Journal

  • GP members have rejected proposals for six-way merger of clinical commissioning groups in Staffordshire
  • LMC had warned benefits of merger were “speculative” and claimed NHSE had driven proposals

GPs have voted against proposals to merge six clinical commissioning groups in Staffordshire, after being told the plans were “driven by NHS England”, HSJ has learned.

The CCGs’ shared management team outlined the intention to merge last year, but various concerns have been raised among the GP members.

The outcome of the vote is due to be formally announced after an extraordinary meeting this evening, but HSJ understands members in a clear majority of the CCGs have voted against the proposals.

The CCGs, which share an accountable officer and several other senior posts, declined to comment on the vote ahead of the meeting, and it is not clear whether they will now pursue the plans.

As reported in the Healthcare Leader, prior to the vote Paul Scott, chair of the North Staffordshire Local Medical Committee, advised his members to reject the merger.

He wrote in an email, seen by HSJ: “Much has been made of the potential benefits of having a single CCG in Staffordshire, yet few if any of these arguments hold true or are at best speculative.


Source: GPs reject merger ‘driven by NHS England’ | HSJ Local | Health Service Journal

Exclusive: Hancock’s ‘NHSX’ power grab for NHS England work | News | Health Service Journal

Matt Hancock is pushing to create a new digital unit in government – labelled “NHSX” – which would give him more direct oversight of national strategy currently controlled by NHS England, HSJ has learnt.

Senior sources familiar with discussions told HSJ that, if it proceeds, the new unit would represent a major shake-up of how the multibillion-pound digital transformation programme was managed and delivered.

The proposal has sparked concern among senior figures at NHS England about the impact of separating digital work from other core-NHS operational oversight, HSJhas been told.

If it does proceed, NHSX would host the lead managers for about 40 national digital transformation projects, most of whom are currently employed by NHS England, HSJ has been told. This would include NHS chief clinical information officer Simon Eccles, chief information officer Will Smart and the chief digital officer.

While talks are at an early stage, HSJ has been told the health and social care secretary wants NHSX to be based in the Department of Health and Social Care, under a director general.

Another proposal being considered is to retain the unit within NHS England but make it more accountable to Mr Hancock and DHSC.

NHSX is also likely to affect NHS Digital, the arm’s length body that collects NHS data and runs some national IT infrastructure, such as NHSmail, the NHS Spine, and the health and social care network.

When approached by HSJ, a DHSC spokesman said it was “keen to create a platform for innovation in the NHS and [to] demonstrate to innovators that this is the best country in the world to develop and deploy health tech to solve some of healthcare’s biggest challenges”.

“We are therefore looking at ways of combining expertise across the government, NHS and industry to make this happen,” he said.

He would not comment further on NHSX.

An NHS England spokesperson said: “We are completely supportive of the approach being developed with DHSC to align national NHS work on technology and information, and agree with the approach which the secretary of state will soon be setting out.”


Source: Exclusive: Hancock’s ‘NHSX’ power grab for NHS England work | News | Health Service Journal

Thousands died waiting for NHS funding decision

This is outrageous and I would have wished to know what the CCGs and CHC are doing about it.

I myself am not sure who is worse Adult Social Care or CHC as both are short of funding to provide care, but the funding aspect should not have any relationship to the process of assessing the care needs.

The funding for care needs to be urgently attended to, because the demand will continue to rise, due to persons living longer, persons withing longer with more disability needs due to the advances in medical science and the increasing population.

If care needs are not going to be available why go to the lengths in extending life.

Nobody cares especially this Government who are doing all they can to extend suffering and increasing the rate of death.

This they are doing by limiting funds for care and also restricting benefits for those who are in need.

If I did not know better I would assume that creating circumstances which increases the risk of death is in fact Government Policy.

In fact I do not know better so it could well be Government Policy, as if people do die there will be less requiring care and also benefits.

This could be classed as Governmental Euthanasia

Virgin handed £2bn worth of NHS England contracts : Welfare Weekly

This week’s news that £2 billion worth of NHS England contracts are being handed over to Virgin Care Services, which follows on from the damning report by the House of Commons Public Accounts Committee last month into the outsourcing of primary care services in England to Capita, has highlighted how the Tories’ shambolic Brexit poses a major threat to the future of the NHS in Scotland, the SNP has said.

SNP Health spokesperson at Westminster Dr Philippa Whitford MP has warned that the power grab over public procurement allows the Tories at Westminster to put Scotland’s NHS under the same threats as the health service south of the border, with the Tories able to open up Scotland’s public services to profiteering firms.

In addition – the increasing threat of a disastrous No Deal Brexit will leave the Tories more desperate than ever to secure a trade deal with Donald Trump’s administration, no matter the cost to our public services. Prime Minsiter Theresa May has continually failed to rule out opening up the NHS to private US firms post-Brexit.


Source: Virgin handed £2bn worth of NHS England contracts : Welfare Weekly

LeDeR-less and indifferent | Community Care

On May 4, NHS England published the Learning Disability Mortality Review (LeDeR) Programme. This work, conducted by a team from the University of Bristol, was commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.

Work towards the report began in June 2015 and in the following months, health and social care secretary Jeremy Hunt helped to highlight its importance in reducing premature deaths of learning disabled people by responding to an urgent question in the House of Commons about the publication of the Mazars review that was published that December.

The Mazars review found that less than 1% of unexpected deaths of learning disabled people were investigated by Southern Health NHS Foundation Trust. The review was commissioned by David Nicholson, then CEO of NHS England, after my partner Rich and I had met with him to discuss the preventable death of our son Connor in Southern Health’s care.

We were very concerned that other people had died prematurely without investigation, after discovering the Trust had badged Connor’s death as natural causes.

Connor died a few months after the publication of another report in March 2013, the Confidential Inquiry into the Premature Deaths of Learning Disabled People (CIPOLD), written again by the team at Bristol University.


Source: LeDeR-less and indifferent | Community Care