The painful journey for disabled people

Disabled people expect PIP to make their life easier, however, the bureaucracy and complexity of the process itself often wears applicants down.

The PIP assessment, in fact, only looks at a limited range of daily living activities which rarely give an accurate or holistic indication of the actual disabled people’s support needs. As a result, many applicants are rejected and apply for ‘mandatory reconsideration’, an internal review of a decision by DWP, which rarely overturn the original verdict. The next, final chance is for the disabled person to appeal.

Almost impossible to get a fair Pip assessment

‘We’ve found that people have a higher cost of living due to the need for help with domestic tasks, having a restricted diet, and needing therapeutic treatment to maintain health which is not available on NHS. None of these difficulties or additional needs are covered in the PIP assessment’, said disability campaigner Catherine Hale, referring to the research work of ‘Chronic Illness Inclusion Project’, which she leads.

The Project aims to bring the chronic illness community together online to explore their experiences under a social model for disability and look at ‘how cultural attitudes and social organisation create unnecessary disadvantage’ to the disabled people’s wellbeing.

Managing such an inspiring online community has given Ms Hale the chance to identify further flaws in the PIP application form.

I spent years battling the government for disability benefits I’m entitled to

Yet another very disturbing account of the DWP welfare benefit process, a system not ‘Fit for Purpose’.

In Social and Health Care we are trying to promote ‘person-centred‘ principles and this should also be so with the welfare system.

Every time you apply or reapply foe a welfare benefit you have to repeat the same information you supplied in all previous applications. Even repeating parts of this information numerous time, in different formats, within the same applications.

Yes, in some instances information will change, but in these instances why not just mention the changes, be they an improvement or a deterioration, which in many instances will be the latter.

But this is too simple for the DWP or are they just trying to catch you out, as though you are lying on this or previous applications.

Yes, this may be for some persons but nowhere near the majority. In my opinion this will be less than 1% of all applicants.

Not like the percentage of MPs who will be fiddling their expenses claims, which is more likely around 10%, but that I feel will be a conservative estimate.

What you do need to do on each and every application is fully answer each question, and in doing so state and provide evidence of both good and bad evidence.

Q14: moving around

What this question means
This question is about how your condition makes it difficult for you to:

stand safely without help
walk safely without stopping and without help
Question 14a
How far can you walk taking into account any aids you use?

less than 20 metres
between 20 and 50 metres
between 50 and 200 metres
200 metres or more
it varies

You may be able to walk some of these distances or stand, but what effort does it take, are you in pain, how long would it take you, how many rest breaks, how long will you need to rest afterwards and many others.

You do not need to lie and this you should not do, but be honest, not only on the form, but with yourself.

Unfortunately we are not usually negative about ourselves as being negative can bring on other conditions, but negative you need to be, provided you can fully explain and, if possible, have written evidence, even an Assessment of Needs, medical evidence or anything that proves what you are stating.

Be fully frank.

Woman denied PIP despite being paralysed

Still these PIP atrocities are occurring, but the question is why? For surely it is obvious that the persons concerned are entitled to PIP, but the DWP keep churning the phrase ‘We’re committed to ensuring that disabled people get the full support that they need. “Decisions are made following consideration of all the information provided by the claimant, including supporting evidence from their GP or medical specialist.’, so where does the problem or problems arise.

Do the DWP and its assessors not understand the evidence before them? Or more to the question ‘Do the DWP and its assessors want to understand the evidence before them?’ Which do you think? Is it obvious?

I know what I believe and it is not very favourably for the DWP and its assessors.

Severely disabled woman left ‘feeling suicidal’ over battle for disability benefits : Welfare Weekly

A severely disabled woman says she is contemplating suicide and can no longer “face life” after a prolonged battle with the Department for Work and Pensions (DWP) for disability benefits.

Patricia Nimmo, 62, from Hull, says she was forced to give up her job as a carer in 2016, due to suffering with Fibromyalgia and severe arthritis in her hands, but has reportedly been told by DWP decision makers that she isn’t eligible to claim the full amount of Personal Independence Payment (PIP).

PIP is replacing Disability Living Allowance for all sick and disabled working age adults as part of the Government’s sweeping reforms to social security benefits, but has been met with widespread critism due to inacurate assessments and record-high appeal success rates.


Source: Severely disabled woman left ‘feeling suicidal’ over battle for disability benefits : Welfare Weekly

How four seriously ill people battled to get their PIP awards

The DWP is practising the ‘3 Wise Monkeys’ here is what ‘A DWP spokesperson said: ” We are committed to ensuring that people with a health condition or disability get the support they’re entitled to.

“Since PIP was introduced there have been 3.7 million decisions made and of these only 5% have been overturned at appeal. “In most successful appeals, decisions are overturned because people have submitted more oral or written evidence.” ‘

The evidence is there, as shown in this article and they have the audacity to say the above.

This is why I state they are practising the ‘3 Wise Monkeys’ for they are “see no evil, hear no evil, speak no evil”.

They are not understanding what is occurring or what is occurring because of them and by them, until they do these atrocities will still happening. The pain suffering and even death of some claimants will still be resulting.

The DWP have to change, so that a supporting welfare system can emerge, for currently it is not supporting for everyone who needs to be supported.

What the DWP is doing should be a crime and those at the DWP and also the DWP would be guilty of committing criminal acts, as it is, currently, not so, then there needs to be accountability, where there is honesty, openness and transparency.

Disabled people forced to go through two disability benefit assessments : Welfare Weekly

The Benefits and Work website have reported that a number of their members in recent weeks have been been made to go through a second Personal Independent Payment (PIP) assessment before a decision is made on their award, because there was a problem with the first assessment report.

One member faced a two hour assessment on Christmas Eve. In January they were contacted by Capita and told that the assessment was “incomplete” and that someone was to be “sent round to finish it.”

Capita have refused to say what information was missing and would not provide a copy of the report until it was complete.


Source: Disabled people forced to go through two disability benefit assessments : Welfare Weekly

Stroke Victim Has Mobility Car Taken Away

This just shows how evil the DWP are, they lack understanding, empathy, common sense and many more.

People want to show their best and get penalised for doing so.

People have good and bad days, so how can one assessment decide how many good or bad days there are. Do they take into account pain thresholds and any other aspects.

From these reports it appears their first priority is to turn down claims, perhaps there is a target, or a reward for doing so.

Many people will give up or not appeal because they are so depressed by the process. Unfortunately this is but one process the disabled, the poor, the vulnerable, etc have to go through and all are demoralising be they Government, Local Authority or Health (Continuing Health Care).

It is as though the system is against them and more likely it is, this is not welfare, but punishment.

This is now the 3rd time I have had to appeal PIP

The 3rd time Steve has had to appeal PIP. Are they listening, No, are the assessors truthful, No, is this fair, No

How many Nos will it take for PIP and other welfare benefits and the respective assessors to be managed to benefit claimants and the activities related to these benefits by DWP officials to be made a criminal offense.

View the appeal

This is a copy of my appeal;
This is now the 3rd time I have had to appeal PIP, this time because of changing descriptors. Maybe I am not explaining my difficulties to others in the right way, it is probably my fault. At the time of the interview, I had my sister with me which lifted my mood a little, and not wanting to show weakness I put on a brave face as they say, and possibly did not show the full extent of my condition. I have HEART FAILURE this is not getting any better, it is in fact getting worse. Feeling like I constantly have to defend myself, and struggling daily just to do normal things is having a negative effect the quality of my life. The stress of worrying about this interview contributed to me having another heart attack. I was convinced I would lose money, which did happen! I now have to seriously worry about losing my home. My condition has significantly worsened since the first PIP claim in 2016, how can you now reduce my PIP ? All this extra stress is just adding to my feeling anxious, nervous and I am terrified about what else is to come. I do have suicidal thoughts more frequently now and have therapy. All I wish, is to be awarded what I deserve and be allowed to heal as best I can.

Point 1. “You said there was no evidence of my difficulty to eat, manage medication, managing health conditions, communicating, reading and understanding and engaging with people”.
I took my sister to help, and as a witness. I told him that I couldn’t cook anything. I had burnt pans and forgot to switch off the oven whilst trying to cook for myself , so my sister cooks and freezes my meals for me. I have missed important appointments and put off confusing letters until I am in the right mind. My sister keeps stocks of my more potent pills to prevent me taking them all at once. I kept running out of important pills, so my sister also arranged for the chemist to help, and now I have doses boxes so she can control and check I have been taking my medication.

As for communicating, reading, and engaging with people. I spend most days in the bedroom not wanting to see or hear from anyone. I need lots of encouragement just to get up. I am not sleeping and sometimes behave aggressively if people come uninvited, even family members that arrive unannounced. I cancel appointments, put off shopping until someone takes me, I am breathless all the time (even at rest now) and have angina if I push too hard. The cold weather also makes my heart beat faster. So not just the depression, the physical act of moving keeps me inside. My moods and coping changes daily so I sometimes cannot open bills and just put them aside until I am reminded. Or important decisions are forgotten and I have to apologise a lot.

Point 2. “You can plan and follow a route of a journey unaided”.
Again, my sister took me to the interview. Both she and I did tell him, I cannot plan a journey and need to be taken to places I don’t know, because of ‘overwhelming psychological distress.’ What would happen if I had a puncture, ran out of fuel, got lost or had a heart attack? I would just not go and cancel the appointment.

Point 3. “You can stand and then move unaided more than 20 metres”
I cannot move 20 Mts without pain, dizziness and breathlessness. The assessor said he observed me walking 26 minutes. No he did not. I did tell him I felt angina pains and I did say at the interview that during a gout attack I am unable to lift my foot, never mind walk a step. I have just had a recent gout attack and can feel the pain now, ready to flare up again. After the recent heart attack which caused more damage to my heart, my movements are more tiring and I am breathless even at rest.
I am getting angina attacks just climbing the stairs too quick.I knew he did not believe most of what I was saying. I had had a heart attack the day before and not wanting to wait for another appointment, I waited and went to the appointment. I told the assessor that I thought I had an angina attack but he didn’t believe me.

The report he’s sent is very different from the assessment as my sister will confirm. I am glad I took her, but it stopped me from showing the full extent of my condition because I was embarrassed. I felt set up right from the start. I saw him watching every little step and movement. Very unnerving. This seems to be the default position “you are lying, and I will decide if your ill or deserving” Also I wondered whether they received commissions for achieving certain hidden targets.The actual daily activities are getting harder for me, he just saw me that day, and made a really uninformed decision. He is not in a position to decide what my condition entails.I may have to move again as I now am paid 150 pounds less until I win my appeal… I don’t know how they are getting away with this. A large percentage of us get so stressed we think about suicide regularly, its deliberately made hard and some cannot go on and end it. Yes I have seriously thought about giving up, but I am lucky to have a family that anchor me.. I am determined to get what is due. I have worked over 40 years and believed that I was paying into a system that would look after me and mine.. until I die. How wrong was I. I can categorically link at least 2 of my recent heart attack to both Universal Credit and PIP. It is inhuman to be treated like this when I need to focus on managing my heart failure, not whether I can afford to heat my home. (Which I can’t at the moment).
I will keep going and try to enjoy my limited time without anger.



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