Archives for posts with tag: quality of life

Most people in their eighties and nineties have experienced a life most young people of today could barely comprehend.

They endured a World War, rationing, National Service, outside toilets, tin baths and much more.

So how do we reward this incredible generation? Fact is we don’t when you consider care provision.

When they get to a point in their lives that they need assistance performing the most basic tasks they are forced to endure a means tested system that is only normally triggered when a crisis point is reached – a fall resulting in a fracture or a stroke.

Source: COLUMNIST: We have totally failed the elderly generation – The Star


It is great when we all hear stories such as these, especially in the current climate of many areas of negativity.

In general the Learning Disability community may not be a vast as some other forms of disability, although there are vast numbers of persons with LD with its many related conditions and each person may be different in many ways, but the numbers of related condition and their effects are may be more vast than other disability areas.

LD is an unknown for many within the UK and its press and Government perception is not generally good, thus progressing the negativity relating to LD to the public at large. But this negativity is certainly very misplaced and this negativity needs to be urgently reversed.

While the LD community is very progressive more collective activity needs to be generated and not only between the large national charities, as there are many local independent small and relatively large charities and a vast arrange of support groups, which in the very austere financial climate are not receiving sufficient funding and in many vases no funding at all.

Now is the time for all to come together and in doing so all other related medically based charities to provide wherever possible a joint solid front to the authorities especially on a local level and with these local authorities to central government, which will eventually achieve more for us all and enhance the lives of our loved ones.

Scope's Blog

Chris is taking part in RideLondon for Scope next weekend. When his son, Oliver, was born with an undiagnosed condition, Chris didn’t know who to turn to for support.

We had never thought about disability seriously until Oliver was born. Oliver has an undiagnosed genetic condition which has certain physical manifestations. He was born with fused fingers and he has a cleft palate. He has some other conditions and a severe learning disability but it’s quite hard to describe. If your child has Cerebral Palsy or something that has a name, then you know where to go because there are people who will support you for that.

Oliver, a young child wearing glasses, smiles

We’ve also found out that Oliver is very strongly on the autistic spectrum as well. This came as quite a surprise to us because he has a very good sense of humour. He is very naughty but not in a bad way. He…

View original post 614 more words

Finding things we can agree on is the only way we are going to make significant change.

Source: What really matters: Let’s focus what we in the autism community can agree on | The Art of Autism

The barriers disabled people face in navigating the built environment are an “unacceptable” attack on their quality of life and right to equality, according to a committee of MPs. The report on disability and the built environment, by the Commons women and equalities committee, calls on the government to take a more visible lead in improving access and inclusion. The report mirrors last year’s report on disabled people and the Equality Act by a Lords committee by concluding that the “burden” of achieving an accessible environment “falls too heavily” on individual disabled people. Instead, it says, this burden “needs to lie more obviously with the bodies who create, occupy and manage the environment”, such as central government and local authorities. The report describes a catalogue of barriers that were reported to the committee by disabled witnesses, including the shortage of accessible homes; public and commercial buildings without step-free access or with poor signage; inaccessible

Source: Disabled people face ‘unacceptable barriers’, and government must do more, say MPs | DisabledGo News and Blog

Unfortunately the world over persons with disabilities suffer discrimination and who or what Government is prepared to change it.

Yes, Rio is presenting the Paralympics, but are the Paralympians being treated with equality compared to the Olympians for transport facilities have been downgraded to some degree and some sporting arenas have been closed, while the funding has also been reduced.

Before we ourselves cast stones is the UK treating UK people with disabilities with equality for the Government is not and so are some of the media.

Brazil is going through a very critical financial crisis and some would say they were in a position to run the Olympics let alone the Paralympics. They have spent money they can least afford, but surely the population of Brazil should benefit from these events, if they do not should not the sporting authorities take into account the financial stability of a country and its politics before awarding any sporting features. However, if they do will any country be suitable.

Take the UK we have had equality legislation for years, but there is still great inequality. Look at our own transport facilities, as even now there are some public transports which still do not have disability access and those that do the access is limited and not always available. These days trains are supposed to be accessible, but are the toilet facilities. For coach travel how many are accessible and then have accessible toilets. This also goes for taxis for how many are accessible and for those that are how can a person using a wheelchair be able to travel safely and securely. Many just feel a ramp to gain access is sufficient, but it is not for wheelchairs should be securely clamped, either facing forwards or backwards for any other method is as dangerous, if not more so, than others not wearing the official seat belts, which is legally enforceable.

Up to 500 disabled people every week have had to give back the vehicles that help them stay independent because of a new tough benefits rule. The Government “Motability” scheme allows disabled people to lease mobility scooters, electric wheelchairs and cars. But every week, between 400 and 500 people are forced to hand over their vehicles after a controversial “20-metre rule” was introduced, according to a report by a leading charity. The survey by Muscular Dystrophy UK also found people living with disabilities suffered serious delays getting their benefits. To qualify for a vehicle under the new Personal Independent Payments (Pip) system, a person must not be able to walk for 20 metres. This is less than half the 50-metre limit the Department for Work and Pensions (DWP) enforced previously. By the end of 2016, 35,000 are expected to have lost their vehicles over the course of the year. “This is having a devastating effect on quality of life and levels of independence,” the report

Source: Benefits rule change forces 500 disabled people to give back vehicles every week | DisabledGo News and Blog

Original Post from LOC Support Unit

An extract

‘A call on Commissioners to raise their game and deliver better services for people with learning disabilities has been welcomed by leading a leading eye health organisation and sight loss charity SeeAbility.

NHS England directors and nursing chiefs urged Clinical Commissioning Groups (CCGs) to improve services and criticised the “slow pace of change” at a board meeting last week. Figures show that just six out of 210 CCGs have commissioned eye services for people with learning disabilities.

Chief Nursing Officer, Jane Cummings, said that Commissioners needed to work with local government, social services, and the Department of Health to improve services for people with disabilities.

NHS Directors, Dame Moira Gibb and Professor Sir Malcolm Grant, raised their disappointment at the “slow pace of change for children with learning disabilities”.

The comments came on the same day as the publication of the NHS-commissioned report, Transforming Care for People With Learning Disabilities – Next Steps.   ………..’

Original post from The Guardian

An extract

‘………..I want to begin with Graham, a friend of mine, and his wife Maureen. Married for just over 50 years, Maureen was diagnosed with Parkinson’s disease and attendant dementia in 2010. Graham is blind, and Maureen was admitted to a care home in 2013 because they could no longer manage together at home.

Graham says it’s a welcoming environment and the care workers are lovely people, but if Graham isn’t there (he visits her every day) she will spend all her time in bed. There isn’t an appropriate room for her to sit in and if she sits in a chair in her own room, there has to be a member of staff to supervise her – and there is never one to spare. Maureen can no longer express her own feelings, but Graham says she seems to enjoy sitting down. Staying in bed raises respiratory issues which seem to distress her. She simply weeps, he says.

Ever since the Sutherland Commission on long term care reported in 1999, and its initial recommendation for free social care was rejected, the response of the three main traditional political parties has consistently been that we could not afford to put social care on the same footing as the NHS and make it a universal service free at the point of delivery funded by general taxation. This, the argument goes, would just be too expensive.

The question is this: why do we think of looking after people as a financial burden? What underpins this way of thinking, that it is a matter of money out rather than money in? Why is it thought that helping to support children facing difficulties, disabled people and older members of our community is a negative rather than a positive?……………….’


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