‘Steep Rise’ In Patients Struggling To Get Epilepsy Drugs


Same Difference

There has been a “steep rise” in the number of people struggling to get hold of medication which helps control their seizures, the Epilepsy Society says.

The charity says “anxiety and stress” are putting patients at greater risk of seizures.

It is calling for the government to commission an urgent review of the medicines supply chain.

Although uncertainties around Brexit have highlighted medicine shortages, there has been a problem for years.

Last week the drug company Sanofi said there were shortages of an epilepsy drug, sodium valproate, in some areas because of supply disruption at a factory last year, and not related to Brexit.

The company added that the situation was improving.

A Department of Health and Social Care spokesperson said: “As Sanofi has made clear, these issues are unrelated to our exit from the EU and they have followed the well-established processes we have to manage the small number…

View original post 392 more words

DWP reverses sanctions decision for epileptic man


Are these cases where sanctions are made purely a misunderstanding or is it a deliberate action to force disabled people, the poor, the vulnerable, etc into poverty so that they cannot survive and will eventually be no longer here.

Hence reducing costs by the ultimate removal of persons who claim benefits. In which case the term ‘callous and cold-hearted’ is well suited.

Yes, a drastic ‘DWP culture change’ needs to occur and then one can judge if there are misunderstandings or not.

Brain activity between seizures informs potential treatment for childhood absence epilepsy — ScienceDaily


New research shows that in a mouse model of childhood absence epilepsy, brain activity is perturbed between seizures. The researchers speculate that this could underlie cognitive problems of the disease, which can persist despite treatment of seizures. That’s according to research published today in The Journal of Physiology.

Absence seizures cause a short period of “blanking out” or staring into space, due to brief abnormal electrical activity in the brain. In this new study, even after the seizures in the mice were treated, the abnormality that was previously seen between seizures persisted. This may provide a potential explanation for why some children with absence epilepsy may have Absence seizures , despite successful treatment of their seizures.

EEG, a test that measures electrical activity in the brain, has thus far been primarily used to detect seizures, rather than identifying cognitive impairment. This study suggests that looking at EEG activity between seizures could help physicians diagnose and monitor cognitive and other attentional deficits in epilepsy.

Source: Brain activity between seizures informs potential treatment for childhood absence epilepsy — ScienceDaily

Epilepsy: why do seizures sometimes continue after surgery? — ScienceDaily


The potential reasons why many patients with severe epilepsy still continue to experience seizures even after surgery have been outlined in a new report. Epilepsy continues to be a serious health problem and is the most common serious neurological disorder. Medically intractable temporal lobe epilepsy (TLE) remains the most frequent neurosurgically treated epilepsy disorder.

Source: Epilepsy: why do seizures sometimes continue after surgery? — ScienceDaily

Genes influence sleep/wake timing of seizures in people with epilepsy — ScienceDaily


New research shows that genetics plays a role in sleep/wake timing of seizures. Researchers studied 1,395 individuals with epilepsy in families containing multiple people with epilepsy to determine whether sleep/wake timing of seizures runs in families.

Source: Genes influence sleep/wake timing of seizures in people with epilepsy — ScienceDaily

San Francisco Bay View » Sister shares story about police profiling and beating her autistic brother


I’m used to reading about and advocating for adults with disabilities, but today our Black and Brown youth with disabilities are increasingly targeted for police brutality and incarceration. Everybody cares about kids, so when will disabled and Black community activists focus more on stopping state violence against youth with disabilities and providing programs after the tragedy?<div class=

Source: San Francisco Bay View » Sister shares story about police profiling and beating her autistic brother