Thousands Of Terminally ill Are Denied Benefits


Yet another large area of problems with the welfare benefits system and the processes concerned, based on Universal Credit and Personal Independence Payment Benefits.

As stated in the article the 6 months rule incorporated in the Welfare Reform Act 1990 was not based on any medical input and even if it had been clinical knowledge has advance by ‘leaps and bounds’.

Clinicians should be solely responsible, in these situation not some DWP offical with no clinical knowledge and therefore has no creditability to make any form of clinical decisions.

I have said before and will do again the the DWP processes should be ‘person-centred’ and not ‘system-centred’.

This, of course, assumes that the DWP and its officals are willing to ensure fair representation for all benefit claiments, which, currently is hard to believe., for it appear that they assume no one is eligible and even when there is much documentation to prove they are this is discounted. One would assume that DWP officials prime consideration is to refuse all benefit applications, based on the results of their practice to follow inhuman conditions.

Are DWP officals really devoid of any feelings and just react as automatons, surely not!!

New Rules: PIP And Terminal Illness


Same Difference

With many thanks to Disability Rights UK.

New amending regulations have been issued that modify the requirement for a terminally ill claimant who is transferring from Disability Living Allowance (DLA) to Personal Independence Payment (PIP) to wait a minimum of 28 days after the first pay day for PIP to be paid.

This welcome amendment will benefit terminally claimants who are awarded a greater weekly rate of PIP than their current DLA weekly rate.

At present, DLA entitlement ends for claimants who are transferring from DLA to PIP 28 days from the first pay day following the PIP decision regardless of whether they receive more or less under PIP.

Terminally ill DLA claimants are also subject to this rule.

However, from 4 April 2016, the new rules mean that where a terminally ill DLA claimant is awarded a greater weekly rate of PIP than their current DLA weekly rate, their…

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Vox Political Meme on the ‘Caring’ Conduct of the DWP


Beastrabban\'s Weblog

Earlier this evening I reblogged Mike’s article about aIDS’ hissy fit over Mike’s blog, and others like his, describing the way people are dying or left mentally ill, sometimes extremely seriously, after being found ‘fit for work’ by Atos and now Maximus. Apparently the Minister for Chequebook Genocide thinks these are ‘outrageous claims’. The only part of his sorry affair that is outrageous is the conduct of the DWP and its mendacious and cowardly head.

Mike’s piece included this meme below, which comprehensively rebuts aIDS’ claim that those assessed are treated fairly and with courtesy. And Field isn’t the only person to have reported such treatment of claimants. Others have too. There have been a number of horrendous reports of people suffering from severe depression being asked why they haven’t committed suicide after they’ve revealed that they’ve suffered thoughts of ending their lives.

Disgraceful. As is all of this shabby…

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#RareDisease Day: Impossible situations create remarkable people


Original post from the blog of Special Needs Jungle

An extract

‘……………Today is Rare Disease Day and during the past week we have been featuring a number of #Rare Disease Dayfamilies who have been affected by rare conditions. Even if you’re not especially interested in the field as a whole, you cannot fail to be moved by the courage of those who face sometimes impossible odds for the survival of their child and yet still manage to help others with similar illnesses.

This isn’t confined to people with rare diseases; I am amazed by the refusal of many people burdened with so much difficulty and daily trauma to just turn inwards and grieve for their own difficult circumstances and disrupted lives.

I understand it, this need to help others. Although my own children do not, thankfully, live with terminal conditions or need 24/7 nursing care, helping others can be life-affirming, knowing that whether or not your actions will help your own child, you may alleviate the suffering of someone else’s. It can also give you back an element of feeling in control of your destiny, when you act to change your impossible situation and help others at the same time.

There is also the sense of obligation to help those charities who have helped support us or, as many do, set up support organisations for similar families where none previously existed. Increasingly, in these emerging times of crowdfunding and the patient advocacy, families are even setting up research and development non-profits to push forward progress into curing the conditions that afflict their loved ones. …………………’

A Grieving Mother’s Kindness Helps Other Parents In a Heartbreakingly Beautiful Way


Kindness Blog

While the birth of a child is a joyous occasion for most, some parents’ experiences are shadowed with deep sorrow. When babies are born with terminal illnesses, the parents may only have days, sometimes hours, to spend time with their child. The heartbreak is unimaginable, leaving a void that can never be filled, not even with memories.

To help ease the pain of these families, and to help them heal, one organization is creating memories of the children’s short lives to celebrate their legacies.

Now I Lay Me Down To Sleep connects volunteer photographers with the parents of terminally ill babies.

Now I Lay Me Down To Sleep

The photographers, each of whom have been trained to handle the delicate circumstances professionally, capture the families’ last times together in poignant and beautiful images.

Now I Lay Me Down To Sleep

Now I Lay Me Down To SleepLogan Bostrom with his parents (top) and father (above).

The photography services are completely free for the families. The organization believes that having the…

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